Essential tremors: any ideas on coping and managing tremors?

Posted by jmb73 @jmb73, Aug 23, 2019

I saw my neurologist yesterday and he said that I have essential tremors. He said they will get worse and progress to my other hand. Do any of you have this and if so is there any way I can slow the progress. He said it will probably take 3 years to get really bad. I am on Gababentin for fibromyalgia and restless leg and that is one of the drugs that is for these tremors. I am dropping things from my left hand and he said that will get worse too. I am buying plastic glasses as I dropped a real glass in the dishwasher- what a pain that was to get all the glass slivers out of the dishwasher. I would appreciate any ideas on coping with this and how I can manage it. Thank you

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@hopeful33250

Thanks for that clarification, @jstewart2019. I'm not familiar with rashes related to PD, could you explain what it looks like? Does it cause itching?

When will you be seeing your neurologist for an appointment?

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My looks like Malar found in lupus, the dermatologist treats the flaking, really doesn’t itch but painful.

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@jstewart2019

No but my dermatologist says my face rash is seen in PD, next visit my neurologist is going to increase that med

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When will you be going back to your neurologist, @jstewart2019?

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In about 21/2 mons next I see a rheumatologist in a week, I may have lupus.

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@jstewart2019

I’ve had mine eight years and now have in whole body, none of my treatments have been effective.

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@jstewart2019 ... have you checked into focused Ultrasonic Ablation of the thiemis? It is avail at mayo Rochester. No incisions, takes about 4 hrs on MRI table... in and out of MRI TUNNEL, SHAVED HEAD and can, right now, only do one side. FDA AND MEDICARE APPROVED.

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Does anyone have this type of tremors,? Trying to connect with a support group. I live on Edina Minnesota.

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@mslinda20

Does anyone have this type of tremors,? Trying to connect with a support group. I live on Edina Minnesota.

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Hello
Have you looked at this:
https://essentialtremor.org/resources/living-with-et/support-groups/
Hope it helps.

Peace
Larry H

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@mslinda20

Does anyone have this type of tremors,? Trying to connect with a support group. I live on Edina Minnesota.

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Hello @mslinda20 and welcome to Mayo Clinic Connect. Because you are interested in connecting with others for support, you will notice that I have moved your post into an existing discussion on Essential Tremors.

Members like @waterboy @hopeful33250 @rwinney and @jmb73 may be able to come in and join you with their experiences.

How long have you been living with essential tremors?

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@amandajro

Hello @mslinda20 and welcome to Mayo Clinic Connect. Because you are interested in connecting with others for support, you will notice that I have moved your post into an existing discussion on Essential Tremors.

Members like @waterboy @hopeful33250 @rwinney and @jmb73 may be able to come in and join you with their experiences.

How long have you been living with essential tremors?

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For about a year or so.

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I also would like to know about how to manage my tremors . I was told to take Gabpentin as well. Any advice for me.

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jmb... I also have ETs, but they seem to be milder than yours. Mine seem to be worse when trying to do more precise things...like writing, typing ect. I can carry a glass, or cup. I was evaluated at Mayo, Rochester for DEEP BRAIN STIMULATION, OR PRECISE ULTRASONIC ABLATION. However, I was declined for multiple reasons... age, severe COPD, PEs, Alpha 1, and stage of condition. DBS is where they implant electrodes in your brain (like having a pace maker), the PUA is where they use ultrasound to ablate part of the control center of your brain (you can spend 2 to 3 hours going in and out of an MRI machine.)

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