Netflix series!

Sigh, I've given up my Netflix for something with less garbage on it - Curiousity Stream which has more science, technology, history, and nature programs on it. I do have one month left on my subscription so maybe I can binge watch the series ☺

@artscaping, I'm less concerned than a lot of members with trying to figure out how I got SFPN. More than likely it's hereditary since I have a first cousin who has it and also my late sister had it although she had diabetes too which may have been her cause. One of my earlier primary care docs told me I was pre-diabetic which I'm not buying since my A1C has never been that much out of line. I actually think mine was from years of taking a statin for high blood pressure. I was in a Mayo Clinic heart study in my 50s where they identified the cause of my high blood pressure as hypertension and then changed the meds I was taking to spironolactone and hydracholorthyazide. By that time I was already have numb toes. I'm more worried about progression and I feel like the supplements I take have slowed or stopped the progression in the past 3 years.

Actually my big hope for others with SFN is some kind of stem cell therapy when it gets advanced enough to have clinical trials and there are positive outcomes. Part of me thinks that diet plays a large part in the disease with all of the GMO products and chemicals used in producing the foods we eat. Don't be surprised if I make an appointment early next year with your MFR therapist to see if she is able to help me with my lower back and problems walking very far or much.

John, thanks for helping mentor this group. Just joined. Have had PN in my feet for about 10 years, getting progressively worse. Trying to get off/reduce very high dosage of gabapentin of 3,000 mg/day. Would like to learn more of your supplemental vitamins etc especially omega 3/6 ratios. Thanks, Terry

Hi Terry @terrydclaar, I posted my story and how I found the supplements I take along with some caveats earlier on Connect here: https://connect.mayoclinic.org/discussion/anyone-here-dealing-with-peripheral-neuropathy/?pg=42#comment-65985. All of the supplements I take I order through the links on the closed Facebook groups website - http://solutions2pnpd.com/products/. The Facebook group link is http://www.facebook.com/groups/spnpd. For omega 3/6 oils it's both plant and fish. I take 4 tsp of Carlson LIQUID Fish Oil (800 EPA/500 DHA) - 2 tsps in the morning & evening. The plant based is 1-1/2 oz daily in the morning of Manitoba Harvest Organic Hemp Seed Oil (2000 mg Omega-3, 8000 mg Omega-6).

If you are interested in trying the supplements I would recomment joining the closed Facebook group. The have a lot of files on the different supplements and you can search the group for topics on questions you may have.

Hope this helps! John

Good morning John
Curious if you have altered the protocol ever or continue by the book? I'm getting closer to starting it independently and piecemealing my supplements. Neurologist agreed to discontinue my b12 injections (will save $) and go to oral supplement then test my levels in a month.
Thanks
Rachel

Good morning John
Curious if you have altered the protocol ever or continue by the book? I'm getting closer to starting it independently and piecemealing my supplements. Neurologist agreed to discontinue my b12 injections (will save $) and go to oral supplement then test my levels in a month.
Thanks
Rachel

...PS: No can do liquid fish oil! I will totally gag! 😣☹😞
Haha !!!!!!

Hi Rachel @rwinney - I continue to follow the protocol of supplements which I've been on for 3 plus years. My neuropathy symptoms of numbness haven't gotten any better like they did after the first 2 months of taking the supplements but they also have not gotten any worse which is sort of what the neurologist told me would happen. I do only have numbness for a symptom though.

I have added a few supplements to help with my overall health and inflammation, joints and heart - liquid CoQ10, liquid turmeric and AREDS 2 eye vitamins.

@rwinney that's what I thought about the fish oil until I tried the one they recommend for the protocol - it's lemon flavored and not fishy which was surprising to me. I also found out they make it in an orange flavor but I like the lemon better.
https://www.amazon.com/Carlson-Omega-3s-Norwegian-Wild-Caught-Sustainably/dp/B001LF39RO/ref=dp_ob_title_hpc
Psst...it's only 2 tsps morning and evening ☺ and I can't eat fish at all - comes up faster than it goes down.

Hi Rachel @rwinney - I continue to follow the protocol of supplements which I've been on for 3 plus years. My neuropathy symptoms of numbness haven't gotten any better like they did after the first 2 months of taking the supplements but they also have not gotten any worse which is sort of what the neurologist told me would happen. I do only have numbness for a symptom though.

I have added a few supplements to help with my overall health and inflammation, joints and heart - liquid CoQ10, liquid turmeric and AREDS 2 eye vitamins.