Netflix series!

Posted by wisfloj @wisfloj, Aug 21, 2019

I’m sure many of us are frustrated with medical opinions, diagnoses, recommendations etc. Very interesting new series called “Diagnosis“ on Netflix. Might appeal to those of you who wonder about the causes, treatment, next step etc. I am only halfway through the first episode and it is very engaging!

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wisfloj | @wisfloj | Aug 25, 2019

I have seen them all now, the first one is by far my favorite! And I guess sometime we choose to just live with the diagnosis?? NOT me, I want a cure!

John, Volunteer Mentor | @johnbishop | Aug 25, 2019

In reply to @artscaping "@johnbishop, So how would the doppelgänger handle “idiopathic”? It seems like we are fighting the same..." + (show)

@artscaping, I'm less concerned than a lot of members with trying to figure out how I got SFPN. More than likely it's hereditary since I have a first cousin who has it and also my late sister had it although she had diabetes too which may have been her cause. One of my earlier primary care docs told me I was pre-diabetic which I'm not buying since my A1C has never been that much out of line. I actually think mine was from years of taking a statin for high blood pressure. I was in a Mayo Clinic heart study in my 50s where they identified the cause of my high blood pressure as hypertension and then changed the meds I was taking to spironolactone and hydracholorthyazide. By that time I was already have numb toes. I'm more worried about progression and I feel like the supplements I take have slowed or stopped the progression in the past 3 years.

Actually my big hope for others with SFN is some kind of stem cell therapy when it gets advanced enough to have clinical trials and there are positive outcomes. Part of me thinks that diet plays a large part in the disease with all of the GMO products and chemicals used in producing the foods we eat. Don't be surprised if I make an appointment early next year with your MFR therapist to see if she is able to help me with my lower back and problems walking very far or much.

helennicola | @helennicola | Aug 25, 2019

John, I too am not overly concerned about the cause, I’ve read that a virus can cause it and that’s what I would attribute mine to, I had a glucose tolerance test which my internist suggested but that was a negative and as far as I know, no hereditary connections. I don’t think that with neuropathy you can unring the bell but perhaps future stem cell treatments will be the answer once the science is perfected.