Stimwave user here: What's been your experience?

Posted by donw @donw200, Aug 20, 2019

Like most of us, I did not want a battery implant so I went with Stimwave scs. Its been permanently placed on my spine about 10 days ago. I do feel a little less pain, but my right foot nerve pain still prevents me from sleeping normal hours, preparing home meals and doing normal tasks. I am disappointed. I was hoping for more relief. My worst pain bursts went from 10 to 9. Plus, I still need pain pills.

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@lorirenee1

Hi Don, I am Lori, and I have really bad peripheral neuropathy in my feet. I have tried so many things to help me, that it is crazy. However, I have never heard of that Stim Wave. What is it, and what kind of doctor puts it on your body? Also, one of the only things that helps me, is Kratom. If you want to know about this leaf, let me know. It does help pain. Lori Renee

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The kratom u use is it the red strain? Pill form? My husband is a 100 percent disabled veteran and has been on everything from morphine to muscle relaxers. Kratom and pure peppermint oil helps alot. The red strain kratom is the best for pain. and the pure peppermint oil is so strong that it goes through the bone and muscle for long periods of time and it heats up. It also helps to use heating pads everywhere in your house. Massage therapy on people with neurological problems makes it worse I believe it like opens up receptors that should be closed.

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@terrydclaar

Lori, I would very much appreciate learning what brand/type of sublingual CBD is working for your neuropathic foot pain. I have the same symptoms as you describe. Thank you, Terry

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Try pure peppermint oil on your feet. It goes straight through the bone and muscle and it heats up. Don't massage. I believe it wakes up those pain receptors.

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@veteranspouseinpain

The kratom u use is it the red strain? Pill form? My husband is a 100 percent disabled veteran and has been on everything from morphine to muscle relaxers. Kratom and pure peppermint oil helps alot. The red strain kratom is the best for pain. and the pure peppermint oil is so strong that it goes through the bone and muscle for long periods of time and it heats up. It also helps to use heating pads everywhere in your house. Massage therapy on people with neurological problems makes it worse I believe it like opens up receptors that should be closed.

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This was the one my husband uses when he finally got tired of all the BS opioid meds his doctors were making him a zombie on.

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@lisalucier

Hi, @lorirenee1 - I can imagine that having bad pain in your feet and trying so many things to help you without success must indeed be crazy. I am glad to hear you are finding some measure of relief. Just wanted to point out this FDA warning on kratom, however, so members can be aware https://www.fda.gov/news-events/public-health-focus/fda-and-kratom.

lorirenee - what treatments have you tried that were not fruitful for your pain?

@donw200 - if you could tell a bit more about the wireless spinal cord and peripheral nerve stimulation you went through, as lorirenee requested, that would be great.

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Most of the FDA warns about kratom is bc of young people overdosing with other meds. When taken properly it really can help especially the red strain pill form. my husband and I after 14 years have turned to less invasive pain medicine and more natural remedies. and he's a disabled veteran that is messed up many different ways his pain levels go from 12 to 15. And the VA has not caught up to those SCS units yet. So basically we are SOL. My spouse just wants to stay away from the medication.

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@veteranspouseinpain

Try pure peppermint oil on your feet. It goes straight through the bone and muscle and it heats up. Don't massage. I believe it wakes up those pain receptors.

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When I say wake up those receptors in your feet it's in a good way not a bad way to make it more painful.

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@rstollery

It doesn't sound like it was all that much help, iunfortunately.

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It's really not. It moves around and sometimes slides out is what I heard. But atleast it going the right direction. Hopefully in 10-20 years it will be more effective.

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@veteranspouseinpain

This was the one my husband uses when he finally got tired of all the BS opioid meds his doctors were making him a zombie on.

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I wish I could erase the image. I'm still new at this

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I have been put on high doses of Gabapentin 300 mg capsules 12 a day and Nucynta 2 tabs 250 mg per tab, I am still having very painful nights and days. I ranched my whole life and was very active, so it's hard to be down a lot of the time. If I hear of anything new that is helpful I will pass it on. Bless you all, Scott

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@veteranspouseinpain

I wish I could erase the image. I'm still new at this

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Hi @veteranspouseinpain, as per your request, I deleted the image.

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@lisalucier

Thank you for taking the time to explain what did not work for you, @lorirenee1, as well as what has provided some relief. I know many members here are looking into a variety of therapies to try and help with neuropathy symptoms.

Some others who may be interested in reading what you wrote about what did and didn't work for your neuropathy symptoms include @lynnaustin @johnbishop @helennicola @sherryw @notborntoburn @rwinney @jimbotch @vradifegari. They may have some comments on their own experiences with these or other treatments, including the wireless spinal cord and peripheral nerve stimulation @donw200 talked about.

What have you found has the longest relieving effect, lorirenee1? What effect did you find the frankincense and myrrh had? Does the water spa help more with burning, pain, tingling?

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My husband is a 100 percent veteran and he agrees completely about kratom. He learned about it when he lived in Japan. I don't know how much research you have done but there's of course different strains. And the red strain seems to be the best for pain but you probably already knew that. there's a couple other things that he learned in Japan that I cannot mention on this site but I can tell you that Japan is way ahead of America when it comes to pain therapy. The VA stuck my husband on morphine Vicodin Soma and about four different sleep medicines take a horse out. It took us about eight years but we finally got them off all of them. Now most of his medications are natural maybe not FDA-approved but natural growing from the ground. I'm so glad that this medicine is out there and it's reaching people that don't know about it.

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