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Feeling at my wits end with Chronic Pain and Fibromyalgia
Usually I am not one to share much of my personal story but here goes...I have what is called moderate to severe degenerative disc disease, arthritis of the spine C3-C7 and lumbar spine, and Fibromyalgia. In the 20 years Ive had pain, I"ve been though many treatments including PT, tens unit, bio feedback,injections, nerve ablations, you name it. I'm prescribed Cymbalta 60 mg for Fibro and anxiety as well as 225 mg of Lyrica. I have been on and off various painkillers too. I'm currently on a long acting oxycodone of 13.5 mg and once a day one 15 mg of IR oxycodone. This has been my regime for a few months now as I switched from 15 mg IR oxycodone. Now for those who are worried about me ODing...I understand. I actually hype-vigilant about my meds. (And I have my hubby and son who watch) Years ago I was on 15 mg Fentanyl patch for 10 months and came off it in one month with no side effects.
Right now I'm really struggling with this rotten pain. I have no appetite, either can't sleep or nap during the day.
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Also over here I almost feel lucky being on Percocet., I see it as making through the day and making life bearable.
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1 ReactionThank you for sharing you story. ❤️
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2 ReactionsHi @trishj46, if you were able to post the message you just posted, you are logged in. I just sent you an email so that we can get to the bottom of what is happening.
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3 ReactionsSorry for your pain too. Unfortunately we are in a club we didn’t ask to be in.
Only thing that actually really helps somewhat with the pain is the Oxycodone. I take it 3 times a day. Also topiamate and amitriptyline. BP for blood pressure.
Baclofen doesn’t seem to help the spasms anymore. Next year I’m going to change my insurance and out source again so I have freedom. PPO
Just didn’t want to look for doctors etc...I am limited
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1 ReactionColleen----it seems like when ever I get some where to posts its by roaming around, I don't feel I know what I am doing. If I get a post from someone, I reply and get onto a page. I know I am not explaining this right! Thanks for help! Do I have to go thru google to get to web site?
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1 ReactionI have been on most of the meds you mentioned, but could not tolerate! Good Luck with insurance change!
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1 ReactionJen-----thanks for sharing!----I was on most of same meds, but insurance company stopped them. They are in the process now of wanting to stop percocet. Where do you live? I am in PA and they want people off opiods! It is so cruel and more & more people committing suicide. Do not know what I will do if stop this. take good care.
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2 Reactions@trishj46 Percocet didn't bhelp me at all What works for one won't for another person Itbid trial and error Be your own advocate you know your body better then the Dr. Have you tried other pain meds? I found a cream I love for both fibro and neuropathy. It's called Topricin cream .I rub it all over spine and sides of spine and wherever you have neuropathy For my back what helps is a magnetic brace I get relieve from this ,good luck
trishj46 Where in PA? I lived a little outside Pittsburgh
Lioness------I am going to check out cream, but my bathroom looks like a drug store with creams and ointments.
What kind of magnetic brace---lower spine? Where did you buy it, online?? I use ice pack on my butt for burning.
rectal pain day & night . With this neurogenic bowel, I have to manually handle since it is paralyzed, a lot of distress.
Have to self-cath too with same distress! Thanks for suggestions! I am open to anything. My Doctor has had me on so many meds, I think she is a saint for putting up with me! Hugs!