@trishj46 Welcome to Mayo Connect. We are a diverse group of patients, family members and caregivers who lend our support and experiences to others. That's a long time to be suffering with pain. I see there is a discussion on pudendal nerve discussion and perhaps you can find some information there:
https://connect.mayoclinic.org/discussion/pudendal-nerve-entrapmentneuropathydamage/?pg=10#chv4-comment-stream-header
Has your medical team been able to offer any treatment that worked for relief?
Ginger