Feeling at my wits end with Chronic Pain and Fibromyalgia

Posted by Jen, Alumna Mentor @sandytoes14, Aug 19, 2019

Usually I am not one to share much of my personal story but here goes...I have what is called moderate to severe degenerative disc disease, arthritis of the spine C3-C7 and lumbar spine, and Fibromyalgia. In the 20 years Ive had pain, I"ve been though many treatments including PT, tens unit, bio feedback,injections, nerve ablations, you name it. I'm prescribed Cymbalta 60 mg for Fibro and anxiety as well as 225 mg of Lyrica. I have been on and off various painkillers too. I'm currently on a long acting oxycodone of 13.5 mg and once a day one 15 mg of IR oxycodone. This has been my regime for a few months now as I switched from 15 mg IR oxycodone. Now for those who are worried about me ODing...I understand. I actually hype-vigilant about my meds. (And I have my hubby and son who watch) Years ago I was on 15 mg Fentanyl patch for 10 months and came off it in one month with no side effects.
Right now I'm really struggling with this rotten pain. I have no appetite, either can't sleep or nap during the day.

Interested in more discussions like this? Go to the Fibromyalgia Support Group.

@kimspr3

Can you please tell me if you had any side effects from Methadone? Today is my first day on Morphine, it's not helping my pain at all. I had a Morphine drip in the hospital but pill form is so different. My brain has so much energy and my pain controls me.

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Methadone heroin without the high says it all but if you have used more than 300mme 40 mg of mdone will just keep you miserable and if your not proactive about your diet and exercise you will get constipated

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@artscaping

@jmweissier, Good evening. Thank you for responding and for attaching the article. It was published in 2018 so is relatively new. I have read it first round. It appears that it is now and always has been difficult to compare apples and oranges.

Having been in CA through the medical and then the recreational onslaught of the marijuana industry........I can see why the variables are different as the legalization and medical diagnoses became more prevalent. I do read Leafly regularly and so will follow up on that reference.

You probably have nailed it as far as your statement about "pot" providing your best pain relief. I certainly feel the same way although the "pot" category is not one that I frequent. In the 70's I grew my own in planters in the living room. Neither do I play with edibles or beverages that arose with the growth of the recreational contingent. I do "go with the flow" sometimes, too.

Did you have injuries to your spine? Were you able to get any relief from a surgical procedure or a PT program? Hats off to you and may you have a pain free sleep tonight. Chris

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Problem with medical marijuana is that not everyone is the same different strains work for different people

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@christjakubik

Problem with medical marijuana is that not everyone is the same different strains work for different people

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@christjakubik, You are correct. And you are your own pharmacist writing your own prescriptions. And there are more strains and more derivative products every day. It takes some experimenting and then takes the ability to find that product in a volatile market. I really don't experiment much anymore....I do research the companies, and even call them to discuss ways that their product might be helpful for Small Fiber Neuropathy (SFN). I also rely on the dispensary staff who knows me. Better than addiction and side effects....at least for me. Be safe and protected from harm. Chris

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@kimspr3

Can you please tell me if you had any side effects from Methadone? Today is my first day on Morphine, it's not helping my pain at all. I had a Morphine drip in the hospital but pill form is so different. My brain has so much energy and my pain controls me.

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Hi Kimspr3
I just deleted my reply because it was more info than needed and if you want to know how I know what I’m about to tell you; ask.
Methadone is its own animal and besides cigarettes methadone was the hardest drug to quit.
The doctor who explained why it was so difficult seemed to know and understand what it was exactly about methadone that made it a great pain med but hard to quit. Methadone lasts longer than most other opioids including heroin. In fact that’s why they use it.
When I started experiencing withdrawal symptoms I had no idea why my eyes were tearing, why I was yawning and stretching like a crack baby. The doc said “ oh that’s with drawl symptoms; we’ll just give you more. I didn’t want more so I asked to detox. OMG!!! What did I ask for?
Just be aware because it a great long lasting opioid but it’s harder to quit than most others

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@stuckonu

Hi Kimspr3
I just deleted my reply because it was more info than needed and if you want to know how I know what I’m about to tell you; ask.
Methadone is its own animal and besides cigarettes methadone was the hardest drug to quit.
The doctor who explained why it was so difficult seemed to know and understand what it was exactly about methadone that made it a great pain med but hard to quit. Methadone lasts longer than most other opioids including heroin. In fact that’s why they use it.
When I started experiencing withdrawal symptoms I had no idea why my eyes were tearing, why I was yawning and stretching like a crack baby. The doc said “ oh that’s with drawl symptoms; we’ll just give you more. I didn’t want more so I asked to detox. OMG!!! What did I ask for?
Just be aware because it a great long lasting opioid but it’s harder to quit than most others

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Thank you for this post. My PCP recommended Methadone because my current dose of hydrocone was not providing enough pain relief.. He is resistant to increase hydro yet will switch me to methadone. No thanks!!! There is a stigma when I hear the names alone of these opiods. I'm trying alternative methods such as a supplement protocol and lidocaine infusions in addition to the 5mg of hydro. CBD/Medical marijuana still looming as possibilities. I hope you are free and clear of that drug and you are still finding pain relief. Be well.
Rachel

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@christjakubik, You are correct. However, if you experiment and stick to the most efficacious products then you are more likely to be pleased with the improvement in your quality of life. Journaling your trials also helps you make good choices. For me, it was best to keep it simple. Do you think the strain labels are static or do you see them changing? What do you find most helpful? Be content and happy today. Chris

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@rwinney

Thank you for this post. My PCP recommended Methadone because my current dose of hydrocone was not providing enough pain relief.. He is resistant to increase hydro yet will switch me to methadone. No thanks!!! There is a stigma when I hear the names alone of these opiods. I'm trying alternative methods such as a supplement protocol and lidocaine infusions in addition to the 5mg of hydro. CBD/Medical marijuana still looming as possibilities. I hope you are free and clear of that drug and you are still finding pain relief. Be well.
Rachel

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You know what...I literally have unopened low dose naltrexone sitting in my cabinet. Amazing that you sent me this link and thank you very much for doing so. Before being diagnosed with SFPN I spent 2 years with pain management targeting neck and head pain with nerve blocks and radio frequency ablations. After receiving less relief from such procedures and expressing concern over hydrocodone use, PM Dr recommended neltrexone. She had patients get relief from it but advised I could not take hydro, would be counter productive. I ordered it then chickened out to start it because I was not willing to give up instant pain relief from hydro. My PCP prescribed my hydro and is fine with doing it but knows my long term fears of its use. I'm very perplexed, to be honest, in knowing what direction to go in next.

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@rwinney

You know what...I literally have unopened low dose naltrexone sitting in my cabinet. Amazing that you sent me this link and thank you very much for doing so. Before being diagnosed with SFPN I spent 2 years with pain management targeting neck and head pain with nerve blocks and radio frequency ablations. After receiving less relief from such procedures and expressing concern over hydrocodone use, PM Dr recommended neltrexone. She had patients get relief from it but advised I could not take hydro, would be counter productive. I ordered it then chickened out to start it because I was not willing to give up instant pain relief from hydro. My PCP prescribed my hydro and is fine with doing it but knows my long term fears of its use. I'm very perplexed, to be honest, in knowing what direction to go in next.

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I layed this topic to rest for a while but why not add it to the mix and ask...has or does anyone use low dose naltrexone for chronic neuropathy pain?

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Hi Jen. Looks like we have some matching symptoms. I was diagnosed w/ degenerative spinal disease, and now am being investigated for fibromyalgia. I was on 5mg hydrocodone for over 10 years. 3 years ago got off them and then had great difficulty mentally when all the trauma, emotions etc came crashing down on me. My solution for opioids is to go through a pain clinic where help is available.

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