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Feeling at my wits end with Chronic Pain and Fibromyalgia
Fibromyalgia | Last Active: Jul 16 6:18pm | Replies (318)Comment receiving replies
Rachel, good afternoon. Your post was amazingly thorough and genuine. This is what I learned. You want to be free of any adherence to medications and their side effects. You want to be as pain-free as possible to enjoy your family and activities that have meaning in your life.
If I could offer the choice of a plant-derived treatment to assist you with your daily pain challenges and a promise to always care about your progress from afar, what would you choose? If it is medical cannabis then here is what a typical day might be:
Morning: Tincture 1:1 CBD/THC Topical: 1:3 or 3:1
Afternoon: Tincture 2:1 CBD/THC Topical: 1:3 or 3:1
Evening: Same
Bedtime: Same
While there hasn't been enough time to design and develop longitudinal studies, there may be some clinical trials. Initially, you would be an experimenter....noting your responses and reactions. For example, I acknowledge and note those times when I have a 100% pain-free moment. It just happens and stops me in my tracks.
Do you have legal access to medical cannabis now? I notice that you didn't mention Yoga. Are you able to stretch comfortably? Have you tried restorative yoga? At this time, do you practice mindful meditation? I hope you sleep well again tonight with an appreciation for how far you have come in acknowledging and accepting your medical challenges.
Replies to "Rachel, good afternoon. Your post was amazingly thorough and genuine. This is what I learned. You..."
Hello Chris
This morning the show Doctors had a panel discussion on the use of cbd/thc to act as a safety net in weaning people off opiods. That was for temporary use only as these were addicts.
Regarding chronic pain sufferers...the panel was split on long term use as there are no solid FDA approvals or dosibg guidlines other than for the children with seizure disorder.
From the yay side...I learned again all of what you have mentioned. Research your dispensery, company, product, strains etc...and it takes personal, safe experimentaion. Plus they did advise to work with your Doctor.
From the nay side...I learned fear of not studying long term effects of cbd/thc, skepticism of who is dispensing, not enough professionals are educated, etc...
Apparently, as more humans jump on the band wagon (various reasons being monetary gain, pain relief, recreational and opiod epidemic) it is forcing our medical practitioners to become knowledgeable and prepared and hopefully the government will step up their game with research pronto!
I've been prodding my PCP about this topic and the other day he notified me he would be attending a seminar and intended to learn as much as possible to assist me. I always say a closed mouth, doesn't get fed.
Don't know how to summarize this...supply and demand, patients advocating for themselves, whatever the case, time is ticking my friends!
I wish to thank you again for being such an advocate for this forum with kindness, support and experience. I've learned so much from you already and am making my best attempt at living in the moment of mindfulness one day at a time. (Will still being prepared and informed for the future however 👍🏼).
I hope you are having a pain free day my friend.
🌻🌼🌻🌼🌻
Rachel
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Hello Chris
Thank you for your sincere, informative reply. At this time I can't commit to choice but, I can commit to knowledge and research.
I greatly appreciate you sharing the cannabis break down and how you work with it. I have not yet spoke to my PCP, who once suggested cannabis, but intend to about medical access. I'm so happy that you achieve pain relief which I can see comes from a variety of places.
I taught myself mindfulness as a necessity for getting through migraine pain. It definitely helped and I continue to use it for relaxation. I have minimally dabbled in my own yoga attempts. Not always comfortable to my body but never tried restorative yoga. I will look it up online and see what I can learn. I know need to be more discipline in this area and not just go to it when feeling desperate.
Once again, thanks so much for sharing Chris. Didn't mean to put a burden on you but, I will say this...this forum and people like you are worth your weight in gold and I get more here than I ever did paying a $40 co-pay for a half an hour at a clinical chronic pain physchologist office!
Rachel