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Feeling at my wits end with Chronic Pain and Fibromyalgia
Fibromyalgia | Last Active: Dec 5, 2024 | Replies (325)Comment receiving replies
@jmweissler, Good morning. I just reread your post and want to thank you for including the medical document which requires a second or even third reading. When I concentrated on the elements of your advice, I felt that this was a "cut to the chase", "net it out" approach to treatment solutions. You gave kudos to medical cannabis. I have chosen not to use pain medications and only use medical cannabis. My pain is manageable most of the time and my zest for finding out what tomorrow will bring is present most of the time.
Would you be comfortable sharing your medical cannabis journey of discovery, experimentation, and acceptance? That would be helpful to many members who are curious or just plain ready to try it and are seeking information. It is not like just picking up a new RX.
My other inquiry is about your exercise program. There is a great video on the internet with a dog and its owner doing the same poses. Is your body able to handle very gentle yoga stretches? Do you use props of any kind? Do you check your spine alignment?
May you grab some joy today. Chris
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Yes please, I too would like to hear your cannibus journey @jmweissler. Chris, I'm really racking my brain here. Hydrocodone does not help my pain enough and I've been on an opioid for 2 years. I'm opening the door to more supplements being added, keep my body moving as best I can, find the joy in each day as best I can, am going to try PEA cream (I think). I'm dedicating to regenerating, if possible, my nerves instead of masking pain. However, it will be a long while at this rate before I drop pain pills as they give me benefit and some relief, just not enough. My IV lidocaine infusions are simply not working on my legs as I hoped. They are debilitating. Heat and a tight wrap works best. My doseage of lidocaine will be upped Monday again then only one more increase before I'm maxed out. Met with neurologist this week to discuss overall game plan. Im incredibly frustrated as my pain is relentless and persistent. I was a very active and involved woman and over the past 3 years my life has sloooowed down (via multiple diagnosis) and now is trying its best to come to a screaching halt. I heed all of the advice from everyone on this forum but at the end of the day it's about what my body allows and doesn't allow me to do. Another big component for me personally are finances. I have been on disability for 2 years and am going on Medicare soon. I need to find proper supplemental isurance to cover the possibility of future treatments that are in my neurologist's wheel house. Including IVIG and plasmapherisis. Truth is I don't know if I'm coming or going. Always lived week to week before my disability now we are really drowning. Not looking for sympathy, I only bring this up because so many of the pain treatments people suggest are out of pocket. It's tough when the pocket is empty. It's a shame that it's cheaper for me to spend $4 per month through my insurance on hydro, and put opiods in my system, verses a natural product that insurance will not cover. As far as cannibus...I DO NOT wish to go through life high however, I DO want pain relief. Ughh, frustrating.