Flaming Swords and Fireworks

Posted by pfbacon @pfbacon, Aug 17, 2019

Have you ever felt like there were flaming swords jabbing up through your feet into your legs 6 or 8 times per second - or - red hot fireworks bursting up through your feet into your legs/body also 6 or 8 times per second ? I did. I was breaking through the gabapentin so my doctor wanted to try adding nortriptylin to my gabapentin but I misunderstood and thought I was supposed to take the nortriptylin instead of gaba so I didn't take the gaba. I awoke early the next morning with just what I described above. I didn't know what to do, I put in a call to my doctor and waited for him to call back (3 1/2 hours later when his office opened). The pain was horrible for 3 and 1/2 hours, the swords and fireworks went on unceasing. I probably have PTSD from that incident but I haven't mentioned it to any doctor because I don't want to be sent to a whole new set of doctors and get more tests, more medicine, more physical therapy; I'm exhausted already from the complex schedule of medical things I have to do daily. Peggy

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Hi.
I too have had hot poker sticks coming from my tailbone to my lower back. Hurts so much I almost crumple to the ground. Happens several times a week. I have failed back surgery and developed an autoimmune disease after having a spinal fusion at the L5-S1. I have tried most every type of traditional and non traditional therapies with no luck until I read about and tried MFR, or Myofascial Release Therapy. This has pretty much stopped the stabbing poking feeling and pain. I still have to take meds for my various ailments, but this MFR has helped me to the point where I have less neuropathy in my feet, and my body is in a much more relaxed state and my pain is diminished for days at a time. I have had 8 sessions so far and 4 more lined up so she can work different parts of my body where the fascia is tight.
I strongly suggest trying this therapy of MFR. also what helps me is I do my morning walk, then I put my legs up the wall in an L shape, which helps stretch your hamstrings, and legs up allows your blood flow and fluid to drain down and provide relief from the gravity used to from the pressure of fluid buildup. Then I do self treatment of MFR which helps as well. It has given me a new lease on life being able to actually be myself and not be so caught up in my ailments.
Research who is trained and certified to do MFR. massage therapists might say they do, but please made sure they are trained and certified in this area
Good luck and hope this helps.

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@mlross4508

Hi.
I too have had hot poker sticks coming from my tailbone to my lower back. Hurts so much I almost crumple to the ground. Happens several times a week. I have failed back surgery and developed an autoimmune disease after having a spinal fusion at the L5-S1. I have tried most every type of traditional and non traditional therapies with no luck until I read about and tried MFR, or Myofascial Release Therapy. This has pretty much stopped the stabbing poking feeling and pain. I still have to take meds for my various ailments, but this MFR has helped me to the point where I have less neuropathy in my feet, and my body is in a much more relaxed state and my pain is diminished for days at a time. I have had 8 sessions so far and 4 more lined up so she can work different parts of my body where the fascia is tight.
I strongly suggest trying this therapy of MFR. also what helps me is I do my morning walk, then I put my legs up the wall in an L shape, which helps stretch your hamstrings, and legs up allows your blood flow and fluid to drain down and provide relief from the gravity used to from the pressure of fluid buildup. Then I do self treatment of MFR which helps as well. It has given me a new lease on life being able to actually be myself and not be so caught up in my ailments.
Research who is trained and certified to do MFR. massage therapists might say they do, but please made sure they are trained and certified in this area
Good luck and hope this helps.

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@mlross4508 It's great to hear another myofascial release success story. Keep up the good work with therapy! It really can turn your life around. MFR has helped me a lot, and for anyone else who is interested in learning about MFR, we have a discussion here for that with lots of links to information. Therapists trained in the John Barnes methods of MFR can be found at
https://myofascialrelease.com/find-a-therapist/

If you don't see someone in your area, you can call Therapy on the Rocks in Sedona which is the practice of John Barnes and ask for names of therapists who have trained there. http://therapyontherocks.net/ There are also some videos about MFR on that website. Not everyone pays for the listing on the website. My PT is an expert level in MFR and it makes a difference to have someone with advanced skills. Here is the discussion https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/

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What is MFR treatment? I'm new on here?

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@tigreyes2004

What is MFR treatment? I'm new on here?

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@tigreyes2004 Fascia is the cobweb like stuff that binds the body together. You're seen that when you skin a raw chicken. It gets tight and starts restricting tissue from injuries or trauma. MFR is myofascial release, and is physical therapy which is a way to slowly stretch and release the fascia so it converts from a semisolid to a liquid phase again and remodels itself. It gets the body moving better and brings circulation to dehydrated tissues. Trapped nerves can be released when the tissue can move properly again. It's important that the therapist does a slow stretch and not an aggressive stretch that causes the body to guard against it which just adds to the problem. If you look at the info in the discussion, it has more specific information and video links that show patients being treated.

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Thank you for the info. I'm new here & don't know too much. I'm going to PT for my back & neck & she said there was no therapy for Neuopathy. How do you look for the discussions.?

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So am I the only one who has felt flaming swords and red hot fireworks ? That is scary. Peggy

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@pfbacon

So am I the only one who has felt flaming swords and red hot fireworks ? That is scary. Peggy

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Hi, @pfbacon - I can imagine that episode with the horrible, unceasing pain for 3.5 hours wore you out and would be really traumatic. I doubt you are alone in this.

I'm wondering if @summer15 @hotfooted @johnframsted @jimhd @summertime4 might have experienced something of what you mentioned with the sensation of flaming swords jabbing up through your feet into your legs or red-hot fireworks bursting up through your feet.

Did getting the medication adjusted how the doctor was envisioning help settle your long period of pain, or what finally ended the intensity you were experiencing?

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@lisalucier

Hi, @pfbacon - I can imagine that episode with the horrible, unceasing pain for 3.5 hours wore you out and would be really traumatic. I doubt you are alone in this.

I'm wondering if @summer15 @hotfooted @johnframsted @jimhd @summertime4 might have experienced something of what you mentioned with the sensation of flaming swords jabbing up through your feet into your legs or red-hot fireworks bursting up through your feet.

Did getting the medication adjusted how the doctor was envisioning help settle your long period of pain, or what finally ended the intensity you were experiencing?

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My doctor told me to take the gabapentin that I had mistakenly skipped the night before and it subsided in about 30 minutes to an hour. Thanks for asking. Peggy

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Peggy, It is amazing how a change of drug can change us. I once changed neuropathy meds, and wanted to die. However, with time, none of the drugs worked, including the Gabapentin. Now I take 300mg. of Gabapentin, and 60 mg. of Duloxetine, only in the morning. After Scrambler Therapy, I was able to wean off massive doses of Gabapentin, that were doing nothing, anyway. Now for pain, I take CBD oil, CBD salve, Frankincense and Myrr, and Kratom. Some days are pretty good. Some days I want to cut my feet off, and on those days, I do the Kratom. I am going to try that myofascial release, first at home, using a golf ball on my feet. God, what we do, just to feel ok.....Lori Renee

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@lorirenee1

Peggy, It is amazing how a change of drug can change us. I once changed neuropathy meds, and wanted to die. However, with time, none of the drugs worked, including the Gabapentin. Now I take 300mg. of Gabapentin, and 60 mg. of Duloxetine, only in the morning. After Scrambler Therapy, I was able to wean off massive doses of Gabapentin, that were doing nothing, anyway. Now for pain, I take CBD oil, CBD salve, Frankincense and Myrr, and Kratom. Some days are pretty good. Some days I want to cut my feet off, and on those days, I do the Kratom. I am going to try that myofascial release, first at home, using a golf ball on my feet. God, what we do, just to feel ok.....Lori Renee

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It’s great that you are wanting to try MFR. However, in my opinion you really need to have a MFR trained therapist to get you started. Rolling on a tennis ball is a great start, but it only a tiny fraction on what MFR is about. The ball is a part of self treatment in conjunction with the MFR therapy to be most effective. I don’t want you to feel disappointed or letdown by trying just the tennis ball as you will not get the full benefit of MFR. Just my opinion and after having been through 9 MFR sessions. I’ve found you need the therapist first, then the self treatment. Good luck either way.

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