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In shock after MAC diagnosis

MAC & Bronchiectasis | Last Active: Nov 1, 2022 | Replies (136)

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@catalin

Thought to share my experience with those who are treated with 3 antibiotics. Recently it has been confirmed that my vision loss was due to a year treatment of 3 antibiotics. The culprit was Ethambutol. My vision gets a bit improvement about two months after stopping the treatment. Good to know that the process seems reversible. During treatment I have been monitored by a ophthalmologist, the problem was discovered at ~11 month treatment. Please note that not everyone will have this problem, please discuss with your doctor about this issue.

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Replies to "Thought to share my experience with those who are treated with 3 antibiotics. Recently it has..."

I’m sorry to hear that has happened to you. I hope it continues to improve.

I’m so sorry about your loss of vision! Can you please tell us what you noticed and when? And how they confirmed it was due to your antibiotics? It is great news that it's improving now that you are off the meds!

I am also on this regime. How did you notice your vision loss?