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High grade Glioma - What questions should I ask?

Brain Tumor | Last Active: May 2 7:18pm | Replies (58)

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@colleenyoung

@marcyprof, what a marvellous response to Eileen.

@eileen61, you were are to disconnect from the Internet when the information is no longer helpful and sends you into an overwhelming spin. However, I'm relieved that you've returned to tell us how you are doing. I know what you mean that working in healthcare can give a base knowledge that can be both comforting and troubling.

Dismaying that you are having to deal with such a reaction from your employer when they should know better to give you time to digest the diagnosis before thinking about practice logistics. I suppose this is their fear coming through, that they will have to manage during your medical absences. They will manage. I'd like to bring in @becsbuddy and @kristennursepatient who have had to navigate these employment waters. They may have some thoughts.

A journal is a great idea. It sounds like staying organized helps you. That's what I need to do to in times of stress.

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Replies to "@marcyprof, what a marvellous response to Eileen. @eileen61, you were are to disconnect from the Internet..."

Thank you! I'd love to hear from others that are farther along the creek than I am. I feel like I'm in my canoe, but haven't been given the paddles yet.

@eileen61 I am sorry that your employer is being difficult so soon. I am afraid that I am not much help though. My employers worked with me and I am easily replaced as FMLAs were priority for the float/resource nurses to cover. I did not do much research on the internet because I see on an almost daily basis how misleading it can be. My family/friends were asking when I was first diagnosed so I did go onto the American Cancer Society website to see what treatment options would be, but this still was not enough to know what the plan would be. I took everything one day at a time. Do what you can today to prepare for what may happen tomorrow. I totally understand how it makes you feel out of control. I hope that your treatment goes well and is successful. Please keep us up to date.