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What can I Expect for my Lung Transplant Review?
Transplants | Last Active: Sep 20, 2019 | Replies (15)Comment receiving replies
We've passed all of our tests everything is going good we're still at the Gabriel house we did have a couple questions when you are accepted to the lung transplant program and they call you when they have a long for you do they have helicopter you do they bring you by ambulance do you drive yourself do you have a pager how do they get ahold of you there's so many questions that we have
Replies to "We've passed all of our tests everything is going good we're still at the Gabriel house..."
@wendylsmith44 I am not waiting for a lung, I am waiting for a kidney at Mayo in Rochester. I was put on the active list in June. My transplant coordinator told me that I will carry my cell phone 24x7 and I will answer every call even if I don't recognize the number (surgeons come to Rochester from all over the US and don't always have a Minnesota number). When I get the call, I will have 8 hours to get to Rochester. I have no idea if this time frame is also true for lung transplants.
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@wendylsmith44, This is great news to hear that everything is going good! If my memory serves me correctly, your head must be spinning with questions right now. My advice is to keep a pad of paper handy and write down things as they pop into your head.
Do you have more appointments this week? You should be getting a pre transplant nurse coordinator who will help you thru every step, and twist/turn along the way.
When I was listed for my transplant, I lived with my iphone fully chargd and ready for the call. My husband did the same. Both of us provided our contact information. (I received my Call on my iphone at 6:42 one morning from my transplant surgeon). I was living at the Gift of Life House at that time, so we just hopped on the shuttle. You will need to arrange for your transportation and it depends on your own individual situation. I'm sure that others have had an experience with travel arrangements that they will share here.
Wendy and Kevin, We are here to support you and answer any questiont that you might have as you move forward.
With Hugs, Prayers, and Hope.