Hi Joan,
I can't believe you're still having sensitivity where you had the screw infection; it's been quite a while, hasn't it? And I'm sorry your headaches have restarted. Do the exercises help? I didn't try PT for mine. I'm still getting sudden onset headaches but fortunately, not nearly as often. I never was able to find out what causes them. Earlier this year I started having daily phantom smells, mostly smoky smells, that didn't really exist. I completely lost my sense of smell almost 20 years ago from my original meningioma surgery so it was really a weird sensation to smell anything at all, even a smell that doesn't really exist. My neurologist was concerned it could be from partial seizures where you are completely alert, but having a focal seizure. So I had a 4 day EEG. I was hooked up to a small portable machine and had electrobes all over my head for 4 days at home. There was a button I pushed every time I had the phantom smell. The results did not indicate any seizure activity but my doctor said I still could be having very small ones. He said if I am having them that my seizure med should prevent me from having a grand mal seizure. Makes me nervous to think about it. I haven't had a grand mal seizure since 2002. The smells come and go now so hopefully they are tapering off. I'm due for my annual MRI in August but I'm worried as you are about having it with Covid still so prevalent. I think we should both ask how are the machines cleaned and what other precautions does the imaging center take. Do you want to consider postponing yours for several months?
It was so good to hear from you. Be safe.
Jill