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Lump by screw from gamma knife surgery, anyone else?

Brain Tumor | Last Active: May 15, 2020 | Replies (42)

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@jill333

Hi Joan, I take 900 mg of Carbatrol, which is the brand for Carbamazapine, for seizures. It has kept me seizure free since 2002, unless it turns out the phantom smells mean I'm having break-through seizures. I still won't know for sure until I get the EEG results in about a week. I also take 900 mg of Neurontin. I take it for hot flashes and to help sleep, but as you said, it used to be commonly used as a seizure drug so I feel like I'm getting a little extra protection by taking it.
I'd like to ask you about your experience with CBD, not for me, but for my sister. She has severe pain in her arm and lower back from degenerative disc, spinal stenosis and arthritis. She has tried various pain meds but they haven't helped and she is in too much pain to start PT. She wants to try CBD oil. Have you had a good experience with it? What form is it - a pill? or is it oil that you apply where it hurts? She is having a hard time finding a place in Atlanta to get it and she is a little concerned about ordering online from a place she knows nothing about. Are you able to buy it in Orlando?
Thanks. Jill

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Replies to "Hi Joan, I take 900 mg of Carbatrol, which is the brand for Carbamazapine, for seizures...."

Hi Jill, I have found medical marijuana to help me a lot. In Florida, you have to go to a Dr. who is approved by the State. You have to bring all your medical records and he reviews them to see if you qualify for medical marijuana. It sounds like she would get approved. Here's the bad stuff- the Dr. visit is not covered by ins and the first one is $240. You have to see him/her every 7 months in order to keep your license which is renewed yearly for $80. The Dr. will write out all the CBD & THC that he/she thinks you should use. I was so lucky and when I went to a State approved dispensary, I requested a consultation as I felt the Dr. had ordered too much of THC and the doc said I should vape even though I have COPD, asthma and interstitionial lung disease. The 23 yr old consult had been on medical marijuana for 8 years- it's only been legal for 1 year! He really knew his stuff and said to "go low and slow". So I took his advice and it has been wonderful. I take .5cc of CBD that has a very small amount of THC in it. The doc had said to take 20cc of CBD & THC! I would not have been able to function. I take my dose as needed which is daily. It does not make me high and takes the pain away. The neurosurgeon who did my gamma surgery told me to bring it with me to the surgery. I had just started on it and the nurse said you cannot "OD on CBD". I took it before the gamma surgery as my lung doc said I couldn't take versed to relax while in the machine. It relaxed me and I even dozed off! Then when they took the helmet off, they had me take 2cc of it to take away the nausea and headache and it did! It takes about 20 minutes to start feeling the effects so if I am having a really painful day, I will take .5cc every 4 hours or earlier if necessary. I have never taken "drugs/pot" in my life but it has made my life so much better. My husband has really bad neuropathy in his feet and nothing has worked so I convinced him to try my CBD and he takes .3cc at night and sleeps pain free. I am his supplier!!! I really think it's worth trying. If medical marijuana isn't legal in Georgia, my niece uses Charlottes Web which you can purchase on line. She uses the capsules and says it works. My "consult James" said the small amount of THC makes the CBD work better. Yesterday, I had PT for my head and back and I took CBD at 8am, 12pm & 3 pm and other than tired, I had only mild pain. She said I would have pain has she massaged/dug into my back and shoulder and it hurt. She is trying to get some blood flowing in those areas. Of course my fibro was flaring and with storms coming tonight, I would have been unable to do anything and would have been in really bad pain. It costs $90 for 600cc's and that will last me about 6 weeks. I have had some days when I don't need it and I have not have any withdrawal symptoms. I also have rubbed it into my arm where the fibro acts up- especially when I am on the computer. It takes the pain away. I also have degenerative discs, sciatica, spinal stenosis etc. so it should help her. I hope you sister can get it. I hope I didn't write too much and confuse you. Take care Joan