← Return to Lump by screw from gamma knife surgery, anyone else?

Discussion

Lump by screw from gamma knife surgery, anyone else?

Brain Tumor | Last Active: May 15, 2020 | Replies (42)
Comment receiving replies
@jmb73

Hi Jill, I also smell phantom smoke occasionally and all my docs have said they don't know why I smell it. This site is amazing as now we have another person- Peg- with the phantom smoke. I live in Orlando, Fl. I am so sorry that you are having focal seizures and amazed that your neurologist was able to diagnose it. I think I have good Drs. - except for the neurologist. I had my evaluation for PT and today I start the real stuff. My PT said we will go slow and I have to be gentle in my head exercises. She is having me do mild back exercises too. I really hope they work. The main thing that seems to work is Medical CBD. I did try acupuncture many years ago for hip pain and it did help but it was very expensive and I ended up getting a hip replacement. What are you taking for your seizures? I take 900 mg of gabapentin for my nerve pain- fibromyalgia and it really helps. I read that it is also a drug for seizures. I hope your results are good.
Take care Joan

Jump to this post

Replies to "Hi Jill, I also smell phantom smoke occasionally and all my docs have said they don't..."
Jill333 | @jill333 | Feb 5, 2020

Hi Joan, I take 900 mg of Carbatrol, which is the brand for Carbamazapine, for seizures. It has kept me seizure free since 2002, unless it turns out the phantom smells mean I'm having break-through seizures. I still won't know for sure until I get the EEG results in about a week. I also take 900 mg of Neurontin. I take it for hot flashes and to help sleep, but as you said, it used to be commonly used as a seizure drug so I feel like I'm getting a little extra protection by taking it.
I'd like to ask you about your experience with CBD, not for me, but for my sister. She has severe pain in her arm and lower back from degenerative disc, spinal stenosis and arthritis. She has tried various pain meds but they haven't helped and she is in too much pain to start PT. She wants to try CBD oil. Have you had a good experience with it? What form is it - a pill? or is it oil that you apply where it hurts? She is having a hard time finding a place in Atlanta to get it and she is a little concerned about ordering online from a place she knows nothing about. Are you able to buy it in Orlando?
Thanks. Jill

VIEW AND REPLY