Lump by screw from gamma knife surgery, anyone else?

Hi @jmb73, that must be so frustrating to have this pain by the screw for your surgery.

I'd like to tag @vickylynn and @jill333 may be able to offer you support and share their experience with you.

whenever you have concerns it is always best to discuss with your physician. When do you get to see them next?

I see a neurologist on 8/22 for my empty sella, finger tremors and other issues that my endroconolgist wants him to check. Would he be the one to check my lump or should I call my PC?

Hi Joan, I'm sorry to hear you're still having problems from gamma knife. My pin sites healed within a few weeks. Have you contacted your neurosurgeon yet who performed your gamma knife about this? I think he would be a good starting point. My Best, Jill

@jmb73 I agree with @jill333. I think you should bring up the lump issue with your neurosurgeon. You can start with talking to your neurologist since you are seeing him in a few days. Please let us know what you find out.

Like you all suggested, my neurologist said to contact my neuro-surgeon. He said he knows nothing about Gamma surgery. He was more concerned about my tremors. He said they should be really bad in 3 years and then he would put me on something! I am not going back to him.

Thanks for the update, @jmb73. I'll be interested to hear what you find our from the neuro-surgeon when you follow-up. What will you do about the tremors?

Hi, Along with multiple brain tumors, my MRI also indicates an empty sella. I'm not sure what that means and it doesn't seem like my doctors are concerned about it. Do you think I should be. Wondering what you found out. I didn't have a lump from my gamma knife and hope yours is healing. peg

I called the neuro-surgeon and he requested pictures of the lump. He was going out of town but said I needed to be seen immediately. I saw the PA yesterday and I have an infection at the pin/screw site. The other sites are getting infected too. She said I have probably had it since the surgery last Jan. and it has just gotten progressively worse. Thank you for telling me to call them. I did go to my PC and she put me on a cortisone salve but I didn't take it. I decided to wait for my appointment with the PA. She was glad that I didn't use it as the cortisone would have slowed the healing. I think my PC thought it was dermatitis as it's been 81/2 months since the surgery! I am currently on 500 mg of Cipro twice a day for 7 days and a betadine swab for the days I wash my hair. I see her again in a week. If it's not 100% then she will order a CT scan and see if it has progressed even further. I didn't ask what will happen if it has. Thanks again for the advice.

Joan, thanks for the update. I hope the antibiotic will knock out the infection and you won't have any more problems with it. Did the PA or neurosurgeon say why they thought this happened? Was it just bad luck that the pin site got infected? Best wishes, Jill

The PA said it could be as a result of my low immune system. She said we all have staff infection on our skin and even though I did what they said and washed my hair every day for 4 days after the gamma surgery, she said I could have gotten it then and I could have had this infection since the surgery. She doesn't know if it's a staff infection. So she put me on Cipro which is a broad spectrum antibiotic. I am lucky that my husband is putting on the betadine as I can't see it. Then I wait until it's dry- about 30 minutes. Then I wash it out. I don't know if it's the antibiotic, my other diseases (Sjogren's, fibromyalgia, Afib, osteoarthritis and more) or the infection but I feel awful. I have been running a low grade fever for many months and have had really bad fatigue but never connected it with the lump. Hopefully, the antibiotic will make me feel better. I live in Florida and I hope the hurricane goes out to sea so I can make my appointment on Thurs. Thanks for all your support.