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Your best tips for raw food safety post transplant.
Transplants | Last Active: Dec 8, 2021 | Replies (92)Comment receiving replies
We did not mean to offend anyone. We were just bombarded with information/misinformation in the house where we stayed and somehow in a support group. We want to make sure that we follow instructions provided by the medical team/nutritionist/infectious disease specialist so that the practices we follow are supported by a medical team. Like you, we thought it was a good idea to buy the cleaning cloth, but we cannot endorse that product based on science. We were told several times by our medical team that my husband could eat cantaloupe and watermelon so long as we scrub the surface very well. They told us not to buy fruits that have been cut in the store, though. We enjoy reading the posts in this community, but we will continue to ask if a particular practice has been recommended by a medical provider.
Replies to "We did not mean to offend anyone. We were just bombarded with information/misinformation in the house..."
@genocurt It is so hard to sort out all of the information, I wish there was a rule book. 🙂
It's great to compare the info each person shares, as was mentioned earlier the guidelines vary from one transplant center to the next and from doctor to doctor. I personally have my local Nephrologist who is from the U of MN and then my Mayo transplant team to bounce ideas off of. I also check in with friends from CA and FL regularly to see what their teams say. So few studies that I know of have been done on Post Transplant Food Safety, which is why we all benefit from comparing notes. I've gotten fabulous ideas from the contributors on this site. I look forward to learning from you too as you share your transplant wisdom. Always something new to learn! 🙂
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Hi, @genocurt. I want to express my belated welcome to Connect. I also want to say congratulations to you and your husband as you celebrate your 3rd month with his lung transplant! I have a liver and kidney (simultaneous tranplant) and am 10 years post transplant.
You have brought up a very interesting and important topic about seeking out practices that are supported by a (your) medical team. As I have listened and observed from other transplant patients over my years as a recipient, I have learned that each individual, each organ, and each doctor/transplant facility has some unique variations on what is required. I want to encourage you to continue to ask questions, and to share your experience here on Connect. I enjoy your point of view and experience because you are in a unique position of speaking as a lung recipient.
I have located some more discussiont that I want to share with you:
- TransplantsLung Transplant Selection
https://connect.mayoclinic.org/discussion/lung-transplant-selection/
- What can I Expect for my Lung Transplant Review?
https://connect.mayoclinic.org/discussion/lung-transplant/
- Browse Connect pages for newsfeed posts from Mayo Clinic experts. You'll also find useful resources and information.
https://connect.mayoclinic.org/pages/
Are you and husband home now? How can I help you to adjust to your new life? I am here for any and all questions.