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Knee Replacement Failure - Need total reconstruction

Joint Replacements | Last Active: Oct 1 10:10am | Replies (121)

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@mwatts91757

I just read your story very heartbreaking . I had a total knee replacement one year ago at New England Baptist Hospital .
I am still 20° away from the goal they have set for me which is 105° flexion . I have had a second opinion,x-rays, and they cannot find an anatomical reason why I cannot flex my right leg . They blame it all on scar tissue . I have had 60 sessions of physical therapy been riding my recumbent bike at my house every day, and do my exercises . I am in pain when I walk from my car to the entrance of the store . Also when climbing stairs I cannot do it step over step . I was never given a CPM machine upon discharge from the hospital which I think would’ve made a grave difference . In addition to the 60 sessions of PT I had a Dynasplint, and two manipulations . We happen to live in Massachusetts but we are 70 miles south heading towards Cape Cod . If anybody has any similar experiences but they please share it with me and what treatments have been done thank you very much !!

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Replies to "I just read your story very heartbreaking . I had a total knee replacement one year..."

I'm so sorry to hear this! How frustrating for you. I'm going to PM you.

@mwatts91757 I’m so sorry for what you are going through. Since you traveled a distance to have the surgery I’m sure you must have done a lot of research trying to find the best possible surgeon th do it.

I had a CPM machine after my first TKR and turned it in early since I did not feel it was helpful. There are many doctors who do not feel they are. My second TKR was done by a doctor who did not suggest one, he made no comment on them either way. So, the CPM machine probably would not have made much difference for you.

I was in such extreme pain prior to my first TKR that I did little research into surgeons. If I knew then what I know now - how many of these surgeries leave patients unhappy — I would have researched more and waited longer to get a better surgeon. As it is, the first is not bad, but the second one by a different surgeon at Brigham and Womens has definitely been better, I’m very happy with it. I hope a cause and a solution is found soon.

@doodles418 I can understand not wanting to wait to have this fixed. It’s awful when pain plagues you daily, especially when you think there may be a solution but you can’t have that yet. I hope you are able to get something done sooner.

I hope we hear back from both of you as you progress.
JK

There is a Facebook group called arthrofibrosis support. You will find a lot of people who have similar experiences there, and may be some answers for you.

Right Knee History
2018 Road Bike Fall
2019 April Root tear to meniscus. Surgery to repair root tear to meniscus. failed
2021 Partial Knee Replacement EmergOrtho in Durham NC. Surgeon retired end of 2021. PKR failed.
2022 TKR Carolina Ortho, New Bern NC Lost flexion due to scar tissue Flexion stuck @ 72 degrees
End of 2022 surgeon put me under to perform Scar Tissue removal surgery (open Knee up), he attempted MUA - it worked - he was able to get flexion to 116 degrees - he did not do surgery. I attended PT every week for many many weeks. Flexion decreased again due to Scar Tissue.
2023 surgeon perform open knee surgery to remove scar tissue to regain flexion. Attended PT continuously, flexion of 113 degrees was accomplished. . Feb 2024 pain presented behind right knee. I could not walk for several weeks, cannot do stairs normally, I have to do one at
a time. I cannot do more than 30 minutes of any activity that requires walking, standing, etc.
No housework, I was very active prior to my inital surgery. This journey has been 4 years and counting.. Currently in PT, recently presented to Duke Ortho in NC - CT Scheduled for 7/12/24 (this coming Friday) - 2 scenarios - bone spurs or fragment of cement left behind from TKR or scar tissue impinging popetiel tendon. Experiencing extreme pain daily with aching, sometimes numbness. my gut feeling is the scar tissue scenario affecting popetil tendon. If that the case, Dr Cline at Duke will perform Ultrasound Guided Percutaneous Tenotomy. Has anyone had this procedure done to their knee???

What is a CPM machine?