@cwallen -- Thank you for starting this discussion. I think there are a lot of members who may find it helpful to connect with each other. Here are a few links I found but maybe you have already seen them.

Alliance for the Treatment of Intractable Pain
-- http://face-facts.org/atip/

Intractable or chronic pain -- there is a difference
-- https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1071146/