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Can someone tell me about Tarsal tunnel syndrome? Treatments?
Bones, Joints & Muscles | Last Active: Feb 10 10:34am | Replies (27)Comment receiving replies
I am experiencing all the symptoms of Tarsal Tunnel Syndrome and have been for over 8 months. After a nerve conduction test I was diagnosed with peripheral neuropathy. Along with all the symptoms of neuropathy my left foot , toes, ankle and lower leg are swollen with sever pain 24/7 unless I take a pain reducer and then it is just less pain. I have been to 2 vein doctors and have varicose veins and venus insufficiency but was told this was not the cause of the swelling and pain. I was told I had lymphedema. I did not know what lymphedema was, but spent some time in that therapy for the swelling. Didn't work. Had a CAT scan and was told lymph nodes were not damaged and I had not had cancer that would have affected them. Seeing a neurologist because of neuropathy. She tells me she has NO Idea why my foot, toes, ankle, and leg are swollen, discolored and so painful. A neurologist mind you. Echp of heart was normal, orthopedic surgeon asked why I was there. (I was referred by the vein doctor???) I was referred to a rheumatoid doctor and have an appt Aug 6. Referred by neurologist. My primary care "I just don't know". Meantime my quality of life has reached a low. I am in pain and the neuropathy and swelling make me very unsteady on my feet. I did find Tarsal Tunnel Syndrome when I was told to be pro active by my neurologist and I have EVERY symptom described. I sent her a message on my portal saying I found this while being pro active and maybe I will hear back. I cannot and my family cannot believe that no doctor has been more active. I am . I really don't know where I am right now. Pain , more pain, depression and feeling left in the cold is really affecting me emotionally. Sorry for the rant.
Replies to "I am experiencing all the symptoms of Tarsal Tunnel Syndrome and have been for over 8..."
You don't have to feel sorry for ranting. It is very helpful to you. While we all have different levels of neuropathy and pain, we are all here to support, listen and care about you when others seem to not do so. All my very, very best to you to find the answers you are seeking. By the way, I am very pro-active as well. My husband is a retired research scientist and we both agree, science just really isn't a science anymore.
I was diagnosed with TTS back in the summer of 2006. I had the TTS release along with the Morton’s Neuroma in Jan 2007.
I suffered tingling & burning within 6 months post-op. My life changed... dealing with the pain 24/7 it did take control of my life & mood.
Fast forward to January 2016. I had a relative tell me about Black Seed Oil. I gave it a try. I have been doing the turmeric, cinnamon, BLack Seed Oil (BSO), black pepper concoction for 4 years now. I am pain free now. Since 2016 I have been pain free. I feel nothing.
The recipe is all over YouTube.
I personally do a swig of orange juice, or green tea. I sprinkle a tspn of turmeric, dash of cinnamon, sprinkle pepper (lemon juice is optional) & I hold this in my mouth (head tilted). I then take a tspn of BSO & drop it in my mouth. I do this twice per day... first thing that goes into my body in the morning, & the last thing that goes into my body at bed time.
Heaven sent for those that suffer from TTS.
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I think you should see another neurologist. You almost sound like you could have complex regional pain syndrome. The swelling and discoloration is something that CRPS does, along with the neuropathy pain. Sometimes, CRPS is brought on by injury, or surgery. Have you been injured before your problems started? I am amazed that venus insufficiency is not connected to swelling. Anyway, getting a diagnosis can take a long, long, time. And treatment for nerve problems is very insufficient. Peripheral neuropathy patients who have pain as a symptom have it a lot, because treatments do not work very well. I take CBD drops, salve, and Kratom, which comes from trees or bushes in Asia. It helps with relaxation and pain, just like the CBD drops. I have also had Scrambler therapy that has lessened my pain, but has not taken it away. Good luck to you. Pain is horrid to handle on a regular basis. My heart goes out to you. Lori Renee