Change in Taste

@avmcbellar Thanks Lisa just read this post. I know how bad that taste is . I have had it on occasion and it can becoming from different source beside medicine. How,s your stomach that will cause some bad taste in mouth, disease,s also I have dry mouth so use ACT its for dry mouth. You,ll get a horrible taste in your mouth if you don't have enough saliva. Other parts of your intestines can cause it also . Hope some of this may help you,ll just have to investigate all things. Good luck

Hi, @avmcbellar - how are things going with the change in taste you were experiencing? Are you still considering seeing an ENT?

Hi, @avmcbellar - I would be wondering, too, if I had a change in taste all of a sudden. Since you've had the 2 years of being extremely sensitive to sweets and then a bitter taste in your mouth, I'd like to tag some members on Connect and see if thy have any thoughts for you, like @skullzmarie @afrobin @lioness @sirgalahad @becsbuddy.

Do you attribute this to any medication you are taking or any diagnosis you have?

For several years now, when I eat dark chocolate, it taste sweet & delicious until after I swallow and then I get a very unpleasant, bitter taste in my mouth. For several months now, I wake up with my tongue seemingly glued to the roof of my mouth feeling very dry. This goes for my lips also. I think it may be a spreading of my SFN as my tongue will remain sore throughout the day. I'm worried but awaiting a referral to a new neurologist.

@avmcbellar Thanks Lisa just read this post. I know how bad that taste is . I have had it on occasion and it can becoming from different source beside medicine. How,s your stomach that will cause some bad taste in mouth, disease,s also I have dry mouth so use ACT its for dry mouth. You,ll get a horrible taste in your mouth if you don't have enough saliva. Other parts of your intestines can cause it also . Hope some of this may help you,ll just have to investigate all things. Good luck

Hello @lisalucier, During the days I had the bitter taste in my mouth I had done 2 things differently. One was to try Vitamin B12 since I do not eat many foods derived from animal sources and two, I started taking a well known over-the-counter NSAID for my headache recommended by my neurologist . I stopped taking both when I discovered the bitter taste. Since then it has gone away. Thanks for asking. I have decided for now not to pursue the ENT specialist. My sensitivity to sweet tastes I have now for 3 years so I just deal with it. I know it is from the AVM. My neurology team of doctors at the time were stumbled. Honestly, I am not overly excited about seeing an ENT. I had gone to a neuro ophthalmologist for my double vision as recommended by the neurology team but the ophthalmologist offered no help. I have not seen the ophthalmologist in over a year. I did learn that acetaminophen did not help me with the headache at all. I had taken it as directed on the package. Ice on my head seems to work better.