← Return to Neurofibromatosis

hmichaelrich (@hmichaelrich)


Neuroendocrine Tumors (NETs) | Last Active: Jul 11, 2019 | Replies (4)

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@hmichaelrich, welcome to Connect. In addition to the gracious help offered to you by @tomewilson and @auntieoakley, I'd like to bring @nfrunner who lives with neurofibromatosis and is a long-time patient of Mayo Clinic, Rochester.

Additionally, I recommend that you or your friend reach out to Mayo Clinic Concierge Services – it is a free service that you can use prior and during your visit to help you find services, such as accommodations, transportation and things to do. You can contact them by email, phone, chat or in person during business hours:
* Phone: 507-538-8438
* Live Chat: https://www.mayoclinic.org/patient-visitor-guide
* Email: concierge@mayo.edu
* Web form: https://www.mayoclinic.org/patient-visitor-guide/minnesota/becoming-a-patient/concierge-travel-services

They may also be able to recommend an on-site patient advocate or volunteer who could accompany your friend while in Rochester if necessary.

Here is more information about Neurofibromatosis care at Mayo Clinic https://www.mayoclinic.org/diseases-conditions/neurofibromatosis/care-at-mayo-clinic/mac-20350498

Please let us know as questions come up during your planning.

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Replies to "@hmichaelrich, welcome to Connect. In addition to the gracious help offered to you by @tomewilson and..."

This is a really nice, helpful response.

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