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← Return to Starting Arikayce - nervous
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MAC & Bronchiectasis | Last Active: Jan 22, 2020 | Replies (85)
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Reading with interest the comments on Arikayse. I just got approved to begin shortly and I too am very hesitant about the side effects. I should begin treatment in the next week or so. Please keep us updated how you do on the Arikayse. Mine is coming from Kroger Pharmacy. I was surprised about that. I am most worried about the voice side effects. I had damage from radiation already and have trouble with it already. I have done the big 3 for 2 years. It cleared up for a short time but came back rather quickly.
Replies to "Reading with interest the comments on Arikayse. I just got approved to begin shortly and I..."
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Mac and pseudomonas oftentimes will come back. Meds may make the mac go away, but not the reason we get it in the first place. More and more drs are starting to realize that us mac patients need to be on maintenance antibiotics for life.