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About ready to scream, been bad month

Lung Cancer | Last Active: Sep 12, 2020 | Replies (54)

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@reibur1951

Update The radiologist seems happy with he treatment for the auxiliary lymph node tho it still but it is still looks raunchy looking and smelling but it has diminished in size

May be crazy - friends report was the node on the shoulder is growing... gee i could see that it has doubled in size has a yellow center... options given was could watch for while or could could radiate immediately and with both continue Ketruda (prembro) friend was indecisive but i pushed buttons I can not see allowing it to continue to grow and rupture as this one has. Radiation starts again as soon as assessment is done - the one just treated went from small - to golf ball size sometime in between started to open up to baseball size and from Jan 31st to Feb 4th to over softball size and completely exploded open... . hoping the assessment takes place Monday afternoon when go down for the labs/dr/ Ketruda (prembro) infusion they stopped that in Sept because the lymph node was starting to grown and began a 3rd clinical study which failed options then was to go on harsh chemo or layoff see what happened for a couple of months with possible radiation or the clinical study

Monday's appointment for labs/dr./infusion starts at 7;50 a.m. which means a wake up call at 3 a.m. and headed for Indy by 4 a.m. Today's appointment was for 9:30 this includes the every 2 hour alarms for fire the wood stove... so little sleep the last 2 weeks and for the next few when this all starts over again... but I will have later appointment for the next labs/dr./infusion in 3 weeks.

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Replies to "Update The radiologist seems happy with he treatment for the auxiliary lymph node tho it still..."

@reibur1951 I so admire your persistence and the good care you give to your friend. Wishing you both well.

Will you post an update after Monday's appointment?

@reibur1951- Good morning. We haven't spoken in a while.I don't know how you are doing what you are doing for your friend. All of us should be so lucky. I'm wondering how you are sleeping and your friend too. DO you need to be up during the night with him?