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About ready to scream, been bad month
Lung Cancer | Last Active: Sep 12, 2020 | Replies (54)Comment receiving replies
I am not sure I am a hero - just trying to do right by him where his 3 sisters (1 half) and 2 brother-in-laws (1 half) have lacked the last three years - they have not made effort to help take him io I U Medical / SImon Cancer Center - I promised his dad and his mother if she understood anything that was going on with I would stick by him to the end it will be 3 years come Oct 25th it been a long road...
Have him here with me I don't think could handle it otherwise... hopefully can be out of this antiquated dilapidated 1975 motile home was just trying to be cautious main thing was to get better vehicle - which proved correct thing to do been 20 plus trips fro the third clinical and will be 12-13 in total for the radiation since I got it its turned over 9000+ and it was around 2000+ as it was used bb one of the employees and a demo - by time radiation is done it will be 12,000 miles on it I love it -
Thanks @auntieoakley, the Koban even did not help I wrapped it around it near bottom to catch the bottom edge of the pads , then done the X-crossing across the the pads and then wrapped middle ways, the gauze stretch band they provides was under neath the koban - and crossed it over his left shoulder - the pads still worked out of it - at last they are providing the syringes of saline, gauze pads and stretch bands - the koban was my ideas guess its the arm movement lifting up down etc causing hte problem - They will have to come up with some more saline solution and gauze pads on Monday.
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Update The radiologist seems happy with he treatment for the auxiliary lymph node tho it still but it is still looks raunchy looking and smelling but it has diminished in size
May be crazy - friends report was the node on the shoulder is growing... gee i could see that it has doubled in size has a yellow center... options given was could watch for while or could could radiate immediately and with both continue Ketruda (prembro) friend was indecisive but i pushed buttons I can not see allowing it to continue to grow and rupture as this one has. Radiation starts again as soon as assessment is done - the one just treated went from small - to golf ball size sometime in between started to open up to baseball size and from Jan 31st to Feb 4th to over softball size and completely exploded open... . hoping the assessment takes place Monday afternoon when go down for the labs/dr/ Ketruda (prembro) infusion they stopped that in Sept because the lymph node was starting to grown and began a 3rd clinical study which failed options then was to go on harsh chemo or layoff see what happened for a couple of months with possible radiation or the clinical study
Monday's appointment for labs/dr./infusion starts at 7;50 a.m. which means a wake up call at 3 a.m. and headed for Indy by 4 a.m. Today's appointment was for 9:30 this includes the every 2 hour alarms for fire the wood stove... so little sleep the last 2 weeks and for the next few when this all starts over again... but I will have later appointment for the next labs/dr./infusion in 3 weeks.