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Hypereosinophilic syndrome (HES)
Blood Cancers & Disorders | Last Active: May 14 4:41am | Replies (59)Comment receiving replies
Hello @vkartsona, welcome to Connect. Was your daughter diagnosed with hypereosinophilic syndrome, or is that the way they are leaning? Here is what Mayo Clinic has to say about this syndrome, https://www.mayoclinic.org/diseases-conditions/hypereosinophilic-syndrome/symptoms-causes/syc-20352854. In that description, Mayo Clinic does mention the use of corticosteroid, but also mentions that it is important to determine the type and cause of HES first. @vkartsona, if you are comfortable sharing, has this been determined for your daughter?
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Dear Justin, thank you for your reply. unfortunately we have not determine the cause of the HES. there is no gene mutation and the bone marrow was negative. she took albendazole for the parasites although all the examinations for the parasites were negative. nevertheless, the white blood cells started very slowly to decrease after 3 weeks by the day she ended the therapy (from 50k to 38k). she has taken any corticosteroid yet since they have not found the cause...