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Caregiving: I’m frustrated and exhausted.

Caregivers | Last Active: Mar 27, 2022 | Replies (223)

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@cindylb

Thanks for the hug! I responded on the other thread too (I've made a confusing situation of that already, ha ha).
My husband is not in hospice. His cancer and overall health is quite unusual. We just returned from his oncology visit and even the doctors don't know what he has (what type of cancer) or what to expect. It's just an 'all gray area' for all of us. It makes it hard to plan and move forward or even know what the next steps should be. My husband is well enough most of the time to care for himself now but can't help around the house or with household or financial situations. That falls to me. I think my biggest regret so far is that I work all the time and don't have time to even really be with him. I feel that if I let one ball drop it will all go bad very quickly. I'm trying to get ahead of it a little so that should things get worse I will be able to manage to be with him.
We're in a weird spot where we don't have financial means we need but aren't poor enough for assistance. I'm not able to manage everything I need to do day to day but not in a position where getting 'help' seems plausible if I want to make sure I have it down the line.......another gray area.
Living in the gray area and going gray pretty quickly!!

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Replies to "Thanks for the hug! I responded on the other thread too (I've made a confusing situation..."

@cindylb, would you like me to move the message from the other related thread to this one, so your story is in one place?

I second @becsbuddy's suggestion of looking into the services that your local hospice may offer. They are not all for the end of life stage. See @debbraw's comment about hospice here: https://connect.mayoclinic.org/discussion/alzheimers-1/?pg=3#comment-309021

Let me know whether you'd like the other thread moved.