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Caregiving: I’m frustrated and exhausted.

Caregivers | Last Active: Mar 27, 2022 | Replies (223)

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@kathymcl

Hi Scott. This would be very helpful to me tho' I am not the originator of this query. Mom has now been diagnosed as Alzheimers and your thoughts re this planning ahead on what she would prefer would be very good for us. Can you advise? We just had our first conversation tonight about for example, f you have Alzheimers and pneumonia, or stroke, or heart attack or are in a vegetative state, do you want lifesaving measures of any type,ie meds, IV feeding, etc

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Replies to "Hi Scott. This would be very helpful to me tho' I am not the originator of..."

@kathymcl There is a document that I have used myself, called 5 Wishes. It is a great, non-confrontational approach to looking at final wishes and desires. http://Www.fivewishes.org is their website, and there is a selection of resource material, also. For so many people, it is a difficult topic to bring up, let alone discuss. Being a practical person, I found it to be invaluable. Let us know how we can help you.
Ginger

Good morning @kathymcl Sorry for the delay in responding, but I had to travel out of state for a funeral. My DIL’s Mom died and it was good for me to be there for our grandsons since I am now the last living grandparent. A sobering thought for me.

Now to your point.

One of the most important ‘rules’ my wife and I established was to be each other’s sounding boards. We agreed to talk through each issue we brought up, think about it separately, then talk about them together again — bringing our new questions and thoughts — and then adjust our decision and put it in writing.

We did this for things we did not have in our legal papers of our estate plan, wills, POA, medical directives, etc. that were drafted by our attorney.

The items we worked on were some of the most important of her life. Perhaps not legally, but certainly for peace of mind. It was about the things that actually mattered most to her. Her decisions for care, some donations and gifts she wanted to give while alive, her Celebration of Life — including music, the five places where her ashes were to go, music, eulogists, and even wine.

Let me know more questions.