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← Return to Caregiving: I’m frustrated and exhausted.
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Caregiving: I’m frustrated and exhausted.
Caregivers | Last Active: Mar 27, 2022 | Replies (223)Comment receiving replies
@kimspr3 I, too, had never heard of adhesive arachnoiditis, but I sure learned from the articles in PPM. Very interesting, but very sad. Do you feel angry or bitter because AA was “given” to you? How have you dealt with it? Is your pain managed well? Becky
Replies to "@kimspr3 I, too, had never heard of adhesive arachnoiditis, but I sure learned from the articles..."
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Yes I do feel so much anger. Medical profession will not address it so it's called failed back surgery. I have TRIED to called Senator's, Congressmen but will not speak with me because I do not live in their state!!! People are suffering and no one cares. You are all making me cry because you care and ask the right questions. I have a wonderful P.M. Dr. He was not well versed with AA but he learned and researched. I have a pain Pump it works but I am getting a bit worse so when I see him we will talk about whats next as far as medication in the pump. the pump is working 24 hrs a day but I have a remote control use it but only four 7 times a day. I have used Yelp to share my experience naming the 1st surgeon 2008. I can't deal with it much. Husband works, alone a lot of the time. I had hopes of traveling, having fun so much more. White Coats took it from me. I wish I could pass a law, Patients MUST be told of the dangerous side effects in writing. To do that a bill must be past. Medical Community is very strong. I told someone I want to die but Iam also scared. I will be leaving my body to sicence so maybe it will help others. I wish I could Volunteer in a hospital or absurd children. I can't drive, sit, stand, bend for long. Thank you, Becky