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Caregiving: I’m frustrated and exhausted.

Caregivers | Last Active: Mar 27, 2022 | Replies (223)

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@gingerw

@kimspr3 I am out of town, and on the road. I have been deleting posts the last two days and not responding/liking anything. But this thread really speaks to me, so please allow me to ramble. Years ago I was involved with someone, whose brother had rapidly progressing prostrate cancer. His wife wanted nothing to do with him, from daily caretaking to doctors appointments to future concerns. It was a terrible thing to demonstrate to their young daughter. I did his caretaking, in addition to a regular full-time job. I was very grateful that he allowed me to, as he was such a gentle soul and such a wealth of Life wisdom. Everyday I was grateful and thanked him for allowing me the privilege of caretaking. Because it was a privilege. He never failed to say thank you. That meant more to me than any thing else. So, to @debiobrien and @vickys know that those we care for may not always say it right out loud, a look, or smile of gratitude, goes a long way.
Ginger

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Replies to "@kimspr3 I am out of town, and on the road. I have been deleting posts the..."

Yes ginger you are so right. My mom and aunt are very grateful for everything i do for them they never stop thanking me and sending me beautiful cards in the mail. I have taken care of other family members that never said thank you in fact they were abusive towards me but i still did the best i could to care for them until their passing. but you are correct just a simple thank you, i love you is all i ever wanted... just to know they appreciate me and care that i am there taking care of them as they did when raising me as a child. its my turn now. unfortunately my brother or sister or cousins do not feel the same a si do but its ok i am all my mom and aunt need we are good. some people care caretakers and some are not.

These messages have made me think, too.
We have both been saying thank you, and you’re welcome, more in the past week, and we have both been different. Cause and effect? Chicken and egg? I don’t know...
I’m in the 4th year of caregiving, for MSA-c and advanced prostate cancer. I learn something new about myself and my circumstances almost every day I think.