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← Return to Treatment for NHL: Rituximab & Bendamustine
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Treatment for NHL: Rituximab & Bendamustine
Blood Cancers & Disorders | Last Active: Dec 26, 2022 | Replies (23)Comment receiving replies
Hello - I noted that you said you have a rare form of Hodgkins that you are receiving rituxan for. Is this NLPHL?
That is what my 27 yo son was diagnosed with a couple years ago. His was pretty advanced. He was successfully treated with RCHOP, but unfortunately it returned shortly after he finished treatment. Docs at Wisconsin Carbone Cancer Center and at Mayo recommend an auto stem cell transplant as the best chance for putting this behind him. That’s what we are heading into now. He actually feels fine - but the Doc’s conclusion is we should treat aggressively now.
It’s difficult because this form of Hodgkins is so rare -they don’t have a lot of research re best treatment- and the disease seems to vary quite a bit from person to person.
My son handled earlier course of chemo just fine - hoping that means the conditioning chemo for the transplant won’t be too awful.
Hang in there with your treatment.
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Yes that is the type of lymphoma I have ---- I was in touch with you in March and April (if I recall dates correctly). The stem cell transplant would be the next step for most of us with this type. I am relieved to hear that your son is feeling fine right now. If time allows (and depending on the limits of his insurance), I would highly recommend getting a 2nd & 3rd opinion on whether the time is now right for the transplant. There are quite a few patients on the American Cancer Society support site that have shared their experiences with the transplant. The most important thing is to keep all germs away from your son so he can recover as quickly as possible. Best of luck to him, you and your family. You are all in my prayers!
And yes, we have a very rare form of lymphoma. Your son falls into the average age and gender of this lymphoma. The more of us that share our experience with Nodular lymphocyte-predominant Hodgkin lymphoma, the more we will help others who have this type. Being diagnosed at the age of 52 and a female through off the lymphoma teams at 3 teaching institutions with whom I met.....very uncertain what to do with me.