← Return to Treatment for NHL: Rituximab & Bendamustine
DiscussionTreatment for NHL: Rituximab & Bendamustine
Blood Cancers & Disorders | Last Active: Dec 26, 2022 | Replies (23)Comment receiving replies
Replies to "I hope you are tolerating the Rituximab & Bendamustine as best as possible. I have a..."
I found your post valuable. I have chl 4b, which has returned after abvd and keytruda. I have another biopsy and then a treatment plan at mayo clinic. I spend time reviewing clinical trials and protocols. Please keep in touch and let me know how you are doing. Don
Hello - I noted that you said you have a rare form of Hodgkins that you are receiving rituxan for. Is this NLPHL?
That is what my 27 yo son was diagnosed with a couple years ago. His was pretty advanced. He was successfully treated with RCHOP, but unfortunately it returned shortly after he finished treatment. Docs at Wisconsin Carbone Cancer Center and at Mayo recommend an auto stem cell transplant as the best chance for putting this behind him. That’s what we are heading into now. He actually feels fine - but the Doc’s conclusion is we should treat aggressively now.
It’s difficult because this form of Hodgkins is so rare -they don’t have a lot of research re best treatment- and the disease seems to vary quite a bit from person to person.
My son handled earlier course of chemo just fine - hoping that means the conditioning chemo for the transplant won’t be too awful.
Hang in there with your treatment.