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What now? What else can be done?
2014-2018, I have had Bronchiectasis, MAC = 4 years on three antibiotics daily; 2018, 1 year drug holiday. Recent positive myco cultures + 5th bout with pseudomonas in 7 months treated with 3 Rx of Levoquin, 1 Rx of cefpodoxime proxetile. Now it’s back again. I have consultation with my Mayo physician next week to find out what’s next. Currently 2 albuterol nebulizer daily and 1 saline nebulizer daily. Using ventolin inhaler before each nebulizer treatment. And acappella after each. Anyone who has this condition knows how I feel...so I will spare you the symptomatic details.
Does anyone know what effect Bronchiectasis, MAC, and additional bacterial lung infections have on life expectancy? I was diagnosed at 66, now 71. And are there natural remedies that might help manage this and have a better quality of life with this disease? I know walking, exercise, healthy diet, adequate hydration, hot ginger tea...etc. But I am also fructose and lactose intolerant. Ugh!
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You would think a blood thinner would make a difference, but I'm sure your doc has taken that into consideration. Please keep me apprised on your concentration & how it goes for you. I'm wondering if I may just bleed occasionally with any irritation, and as @windwalker said the 7% has an effect on MAC so maybe I could try it? At least the 3% does thin the mucous and it definitely helps me cough that up.
I am still testing positive after 18 months on the Big Three. Still Susceptible to Azithromycin. I am contemplating Mayo or National Jewish. Mayo would be in Rochester MN. Has anyone been to Rochester and do you recommend asking for a certain MD or any other tips before or preparing to go. I feel a big disconnect with my current Pulmonologist and Infectious Disease MD. I am really also interested in joining a research study if anyone is getting any tips on those.