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DiscussionEmotional implications of having a feeding tube
Ear, Nose & Throat (ENT) | Last Active: Jul 21, 2020 | Replies (20)Comment receiving replies
Replies to "@colleenyoung it is VERY difficult to feed myself with discipline. I have a nutritionist who makes..."
@patriciagsr My heart goes out to you although it sounds to me as if you will be able to eat again. There is hope. I have had head and neck cancer and can eat only wet, mushy food. Yesterday I had a fit of self pity. I was hungry! But most of the time I'm grateful that I can eat anything at all. Many of my friends are tube fed or went through a long period on the peg.
No more social eating is a nightmare at first, you get used to it and for me a big frothy coffee while other people eat is my solution. I can eat some cafe food but it is messy. I had a coffee a couple of days ago with a woman who is tube fed. I had a coffee, we sat outside, we talked, someone came up and joined us with a big container of chips and offered us some. We explained why we couldn't eat them and an interesting conversation ensued. I hope this friend will one day be able to sip a coffee through a straw!
I'm very interested in your account of the formulas. I was on one for about 7 weeks and had no problem but some people hate them and would like to learn how to use an alternative.
Also interesting is what you say about sugar.
Go well. keep persevering, try to do the non-eating things you enjoy . I hope for a good outcome for you.