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Emotional implications of having a feeding tube
Ear, Nose & Throat (ENT) | Last Active: Jul 21, 2020 | Replies (20)Comment receiving replies
Great topic, Patricia. I'm bringing in fellow members @jeffk @deborahe @alpaca @puprluvr and @beanglow, who know first hand about the emotional implications of having to have a feeding tube and all that comes with that, such as the loss of socialization and food. I hope they'll share their experiences and tips for seeing the light at the end of the tunnel.
@patriciagsr, I can imagine it must be hard to maintain the discipline to feed yourself even when you're not hungry. Do you also miss the feel and pleasure of having food? Are you the personality type that "lives to eat" or "eats to live"?
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@colleenyoung it is VERY difficult to feed myself with discipline. I have a nutritionist who makes my diets so I make my blend in the mornings and know that by the end of the day all of it should have been "eaten". I dont suceed everyday (like today that I am struggling) but try to. I have swallowing therapy 2 hours per day so the therapist is working with me so I can eat again. Very difficult but she makes me taste things and try to swallow, some days better than others, but 100% of my nutrition is through the feeding tube.
My personality used to be "lives to eat sweets", now I dont have any and to be honest I feel much better without sugar.