Hello @lydaneedsadvice,

I would like to welcome you to Mayo Connect. I can certainly understand your frustration at not being able to get a clear picture of the problem you are having. It sounds as if you have several different diagnoses. If you are comfortable sharing more, could you share what type of specialists you are seeing? I would think that one of your specialists would be an endocrinologist. Is that so? What other specialists are you seeing?

Many of us on Connect have had to search for answers to unusual medical problems and we know how much effort you have to put into getting answers. I'm glad to see that you are being persistent and proactive in seeking answers to your problems. This may take a while.

I would like to share with you a post created a while back on Connect. It has to do with how to meet with a new specialist. I think it might be helpful to you in formulating questions for your doctors. Here is the link, https://connect.mayoclinic.org/discussion/your-tips-on-how-to-get-off-to-the-best-start-with-a-new-specialist/?pg=1#comment-240765. I would encourage you to look at items 4 - 6.

Please remember that it is always your right to seek a second opinion. If you decide to get a second opinion I would encourage you to seek out a medical facility with a multi-disciplinary approach, like a university medical school or a facility like Mayo. Do you live near either?

I would also like to tag @JustinMcClanahan to this discussion to see if he might have some insight.