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Replies to "No, the cardiologist just said that because they didn't find pericarditis in my most recent MRI..."
Heart & Blood Health | Last Active: Oct 20 8:57pm | Replies (21)
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No, the cardiologist just said that because they didn't find pericarditis in my most recent MRI scan, I am to taper off the pericarditis medication for the next month, but he didn't prescribe anything to manage myocarditis symptoms, which I still have. I'm very confused and scared. I think I am going to try to get a second opinion from another cardiologist. I have been in pain and have had breathing problems for 3 months now, and I feel like everything has been completely mismanaged by my doctors.
Replies to "No, the cardiologist just said that because they didn't find pericarditis in my most recent MRI..."
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@helena4000 @JustinMcClanahan
Hi Helena, I am a adult female Giant Cell Myocarditis survivor and live in the Chicagoland area. I credit the Advanced Heart failure team at the University of Chicago Medicine for saving my life. I was literally dying at another hospital in the area (they were ill equipt to handle a myocarditis case) and transferred to U of C in the nick of time. Unfortunately, I don't believe many doctors know how to treat Myocarditis. I'd be happy to recommend Dr. Gene Kim to you as he is the cardiologist I see on a routine basis. Dr. Uriel oversaw my care when I was in the ICU. There are drug therapies that can help reduce inflammation. There are additional tests you can have too to understand how well your heart is pumping (ejection fraction numbers) that are important to know too. Eat blueberries and spinach as they are high on antioxidants which help manage free radicals from radiation. I know you're scared, I get it. My first step would be to change doctors and hospitals. Let me know how else I can help.