← Return to Preparing for a heart transplant: Would love to chat with others

Discussion
Comment receiving replies
@danab

Well I'm home now and doing great. My appetite has come back which really had me worried. They dtod finally find a fourth virus in my lungs. It took a scope and lung rinse to get the culture needed to prove the virus. It had a long name and i didn't write ot down bit basically they put me back on a heavy dose of bactrum for a few weeks to kill it. So I'm still have some issues with my blood counts and im under the care of a hematologist to monitor things and we are doing a maintenance does of IVIG once a month to help keep the parvo from causing issues. They also lowered my prograf pretty low so to try and get my immune system to help. Hopefully i pray my heart behaves while we continue this treatment.

Jump to this post


Replies to "Well I'm home now and doing great. My appetite has come back which really had me..."

@danab Happy to hear you are home and doing great. I suspect the blood counts will improve when you get rid of the infection.
They keep my immunosuppressant fairly low also, just slightly within range. I think that's probably the goal after you have had your new organ for a while.
JK