Connect
← Return to Preparing for a heart transplant: Would love to chat with others
Discussion
Preparing for a heart transplant: Would love to chat with others
Transplants | Last Active: May 28, 2022 | Replies (47)Comment receiving replies
@lisalucier hi Lisa, well basically they are a little baffled whay my blood counts are still low and im still getting fevers. They took me of of cellcep and put me on sirilimus think that had something to do with the issues. But in tru Mayo way they have not given up and im confident they will figure it out. Basically i know of 3 virus 2 i had since transplant. CMV from donor heart which has not really caused any issues, Parvo b19 which is one of the culprits and c diff which has been a problem with my bowels. I willl say im starting to feel a little better and hopefully soon we will have it solved.
Replies to "@lisalucier hi Lisa, well basically they are a little baffled whay my blood counts are still..."
@danab It sounds as if they are on top of your problems, I hope they solve all of them soon so you will be 100%.
I have been having monthly lab work (transplant was in September 2016) and my blood counts are always slightly below the range, but not so low that they are alarmed. In fact everything has been so good and so consistent that I now only have to get my lab work done bi-monthly.
I was switched from tacrolimus to sirolimus because the tacrolimus was having an effect on my kidneys. Things are good now, as long as I drink a lot of water -- 80 - 100 ounces a day.
Looking forward to hearing when they finally have all of this resolved for you.
JK
@danab, how are you doing?
Connect
@danab, I send you my thought and hopes for continued progress.