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Preparing for a heart transplant: Would love to chat with others

Transplants | Last Active: May 28, 2022 | Replies (47)
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@jbilton

Thanks for your reply. We have arrived in Jacksonville and will start our journey tomorrow. It was encouraging to see that you were driving in 6 weeks. How long were you in heart rehab and still in patient? How frequent were your appointments for follow up? Just curious as to the logistics of not living in Jacksonville.

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Replies to "Thanks for your reply. We have arrived in Jacksonville and will start our journey tomorrow. It..."
Lisa Lucier | @lisalucier | Jun 18, 2019

Hi, @jbilton - hoping all goes well as you start your journey in Jacksonville. Hoping that @danab will have more information on how long rehab lasted while still inpatient and also frequency of follow-up appointments.

danab - how are things going with your virus and time in the hospital?

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Dana, Volunteer Mentor | @danab | Jun 25, 2019

@jbilton i got my heart on Jan 5 and release from hosp jan 17th. My wife and i stayed in a hotel until first week of February. First 2 weeks after discharge i was back at Mayo every day during the week. I live 1.5 hours from Mayo Phoenix so by feb they were only a couple of times a week so we drove from home. Makes for a long day though. I was in heart rehab 2 times a week for 16 weeks. I was able to find a rehab center at another hosp only 40 min from home which cut down the drive. I would still use the hotels on occasion when we had a few days worth of apts. I was lucky tht my insurance reinbursed me for hotels up to 5000. The first year. I hope i answered al your questions. Sorry for the late reply im still in the hosp. But finally trying to get thru all my emails.

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