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tnraemae (@tnraemae)

MGUS at young age

Blood Cancers & Disorders | Last Active: Sep 28, 2023 | Replies (10)

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@tnraemae

Thank you for your reply! The hematologist recommended watchful waiting and that I have all the lab work repeated every few months. He was very surprised that it was detected at my age and not in the serum. Honestly, he really didn’t seem like he knew what to do with me.
I forgot to include in the original post: the protein detected was IgM kappa and was detected during immunofixation but not during electrophoresis.

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Replies to "Thank you for your reply! The hematologist recommended watchful waiting and that I have all the..."

Hello @tnraemae I'm so sorry to hear of your diagnosis at this age. I'm also 36 going through my own blood disorders and I'm sort of getting the same feedback of just watchful waiting. I did the electrophoresis and the light chain kappa test. The electrophoresis only detected the polyclonal gamma globins for me, so no M spike (same with the light chain kappa test). I hope your Doctor continues to give you good care and doesn't ignore any of your concerns. Sending you positive thoughts.

@tnraemae How are you feeling recently? Are you satisfied with how your doctor is treating you? Has your doctor been able to give you any insight as to why you may have shown this condition at an early age?
Ginger