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tnraemae (@tnraemae)

MGUS at young age

Blood Cancers & Disorders | Last Active: Sep 28, 2023 | Replies (10)

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@JustinMcClanahan

Hi @tnraemae, I'd like to invite some of the other members who have talked about being diagnosed with MGUS to share their experiences with you. While I cannot vouch for their age when they were diagnosed, they may have some experience and knowledge to share with you despite a potential age difference in diagnosis. @anniemaggie, @gingerw, @mari, and @susangs have all discussed MGUS here on Connect recently in the following discussions:

Groups > Blood Cancers & Disorders > MGUS
- https://connect.mayoclinic.org/discussion/mgus-2d464e/
Groups > Blood Cancers & Disorders > MGUS & Osteoporosis
- https://connect.mayoclinic.org/discussion/mgus-and-osteoporosis/

@tnraemae, If you are comfortable sharing, once your provider detected the M-protein, what was his or her suggestion moving forward as far as management or monitoring?

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Replies to "Hi @tnraemae, I'd like to invite some of the other members who have talked about being..."

Thank you for your reply! The hematologist recommended watchful waiting and that I have all the lab work repeated every few months. He was very surprised that it was detected at my age and not in the serum. Honestly, he really didn’t seem like he knew what to do with me.
I forgot to include in the original post: the protein detected was IgM kappa and was detected during immunofixation but not during electrophoresis.