← Return to Anyone have MGUS and being treated for osteoporosis?

Discussion
Comment receiving replies
@kandc317

HI-I am the primary caregiver for my wife who has similar issues. Did your doctors tell you much about MGUS? It's the precursor for Multiple Myeloma. Both start when your marrow creates abnormal protein cells that overpopulate the bone marrow space. In the process they leach calcium out of the bones that enters the blood supply causing downstream issues while weakening bones.
My wife had L1 repaired by kyphoplasty last summer. She also had fractures of T7 & T8 that were mending themselves and weren't repaired by surgery. I'm not a medical professional, but have learned a lot about MGUS/MM. You are fortunate you found your issues as early as you did as MM is a silent disease. In hindsight my wife had unexplained leg fractures 3 plus years ago. We just attributed them to age and having a job requiring lots of lifting. Between the leg and spine fractures she also had several rib fractures. Our picture was slow to evolve into an actual diagnosis. In fact we diagnosed her before the doctors did. Most importantly for you, if you've not had recent blood and urine tests, you need to have them. Assuming I'm on the right track, you'll eventually have genetic testing too. All 3 parts were needed for us to get our confirmed MM diagnosis (imaging, labs and genetics).
A good source for MGUS/MM info is the Multiple Myeloma Research Foundation (MMRF). Good luck with your investigation. There are several good relatively recent therapies to slow disease progression.
Your hematologist should have a network for you to consult and treat with, if/when necessary. MGUS is sometimes only watched and not immediately treated. Although my wife has full blown MM that had to be dealt with post haste.
Regards

Jump to this post


Replies to "HI-I am the primary caregiver for my wife who has similar issues. Did your doctors tell..."

Thank you for the information. The ball is already starting to roll getting my ancestry and my background check just in case of future issues that I might not knowing that I'm going to have. I don't have insurance like my husband and my daughter but I do have a doctor and I go see him in 2 days to go get blood work done and to try to figure out what's going on. So you're right I'm heading in the right direction. Thank you. And I'm so sorry about your wife. I couldn't imagine brittle wanting to live a good and fulfilling life. But she will medical advances are increasing every day. Let's hope for the best