← Return to Anyone have MGUS and being treated for osteoporosis?

Discussion
Comment receiving replies
@cctoo

Do any of you with mgus have issues with feeling sick with colds, sinus, etc. often? And taking antibiotics often? I was just diagnosed with this and not given any information on what to do. I rarely feel really well....I am 83, and am scared of this diagnosis.....am tired a lot too.

Jump to this post


Replies to "Do any of you with mgus have issues with feeling sick with colds, sinus, etc. often?..."

You should ask the doctor you trust with this question, or see an oncologist and ask. MGUS does not usually cause these kinds of issues from my understanding because it does not prevent bone marrow from creating the correct cells. That being said, there might be something else underlying with it that is causing your immune system to be off. There are other things that could be happening as well. I met someone who was told they had MGUS, turned out to be something else entirely and of a more immediate nature. There are so many things besides this that could affect your immune system, but because you have this diagnosis, it pays to be especially careful and double check all the boxes.

Low grade fevers too. The thing is, unless you have an actual diagnosed infection, you shouldn't be taking antibiotics. That means that even if you have symptoms like the ones you described, your doctor should not be prescribing you endless rounds of antibiotics for what are likely small infections that your system is likely capable of fighting off on its own. Also, if when you take antibiotics you are not limiting your sugar intake, consuming large amounts of probiotics (yogurt), you are killing off the good bacteria in your gut and not replacing it. And then, like me some fifteen years ago, you wind up with a systemic yeast infection, thrush, and the inability to consume solid foods for more than three months. Trust me auntieoakley, you don't want to go there. Be careful. Best of luck to you!

I have MGUS and Hashimotos. I am more easily tired than I used to me. I could be wrong but I was told that with MGUS you can get sick more easily b/c your immune system is weaker. I also have osteoporosis which was caused by either the MGUS or previous hyperparathyroidism. I was diagnosed with MGUS and hyperp. within a couple months of each other and the previous year had to have one of the parathyroid glands removed. Both the hyperparathyroidism and the MGUS I believe can weaken the bones.

I was concerned with the initial diagnosis but was told there’s only a 1% chance of it changing over to MM with each passing year. I have an excellent oncologist in Boston that screens me every year, so I won’t worry about it unless it changes to MM.