So sorry to hear you are experiencing such horrible symptoms. I write because I seem to be moving in your direction especially with the mouth and throat issues. Would you mind giving a bit more of your background as to what age range you're in, how and when did this begin, any antecedent events like toxic exposure, vaccines, medications for other issues, family history etc. Anything that others can connect with to provide some thread for possible inquiry by the medical community would be helpful in my opinion.