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@reenj62

@badmac , I can relate to you completely! My story is so the same as yours. I was going to cardiologist since my early 20s. Also said I had a heart murmur. Always did testing but never found anything. Finally after my younger brother who is 16 yrs younger then I fell over playing basketball at school,he was 16 then. We discovered we had the genetic for HCM. My brother did survive. Which they say was nothing but a miracle after being in a comma for weeks. Long story short, since then I have been on many medications for HCM that seemed to be controlled very well untill about 4 yrs ago things started to change and it was like the medications were no longer working. I started having many symptoms from severe fatigue, strange heart palpitations, very bad head fog, dizzy like being drunk & I don't drink lol, to passing out a few times. My anxiety has no doubt become worse also. I had testing done all day on may 31st at Mayo MN. Today is Sunday June 2 and as I lay here crying this morning writing this I am having severe anxiety for my myectomy tomorrow! I thinks it's all the what is thoughts going through my head and I feel scared also wondering if I'm doing the right thing. I just turned 57 and even considered leaving the hotel and going home last night. Lol. Thank goodness for my family here with me or I may have been gone. But I read everyone's post's and it does help relax me. I've decided to stay and will call tonight for my surgery time tomorrow! They say I am in the best hands with Dr Shaff. So yes I am freaking out but I'm gonna try to stay positive and believe this is the right thing to do. Blessings and much luck to you!

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Replies to "@badmac , I can relate to you completely! My story is so the same as yours...."

Reeng62, you will be so glad you did it. Mine was 10 months ago and I feel like I've been given a normal life again. Dr. Schaff is an amazing surgeon (cardiologists in TX who look at my heart now say they rarely see a post-myectomy septum that is so even). Put your trust in the team there.... It's going to be fine.... Better than fine!

I would love to hear about how you are feeling now? I have just been diagnosed by my home cardiologist. I only went to her because of pre-op on biopsy and they heard a murmur that was significant. I am 72 and have had good health. Once she explained and asked me some questions, there is no doubt that I have had symptoms all along but just ignored them. I am scared...more because family will be around more people than they have been since March. We have been careful and that makes me nervous. Do you think if we rent an airbnb for 2 weeks we have time covered?