← Return to Freaking out a bit - Upcoming surgery!

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@sheim

I totally can relate to you freaking out. I was officially diagnosed with HOCM in Feb. I tend not to believe Dr's, especially when they want to give me a medicine I don't want to take ( in this case Disopyramide). I got a second opinion from a dr not connected with the health system I go to. He looked at every test report I took in and was 100% in agreement. He also said he thinks a septal myectomy is in my future but if my dr did suggest it to go NOWHERE but Mayo in Rochester Mn. He actually said don't go to Az or Fl. Maybe he's partial or maybe they really ARE the experts. Find out how many of this surgery Az Mayo does. If it is less than 200 a year I'd consider a trip to Mn. The way he explained it. ....they do between 200-250 a year. The rest of hospitals nation wide COMBINED don't do that many. He said you need more than a dr who knows how to do it...you need a whole team of experts. I'm headed to have mine done next month and while I'm nervous about it, I think I'm doing the right thing. Good luck to you!

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Replies to "I totally can relate to you freaking out. I was officially diagnosed with HOCM in Feb...."

The number of procedures done at Rochester drove my decision. My experience was amazing. I left on the 6th day to go home. Stay in touch and let us know how things go. Onward!

I would love to know about your recovery after surgery. I hope you are still online and are willing to share. Thanks for the information you provided.