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HELLO SCOTT, I HAVE ADHESIVE ARACHNOIDITIS. I CAN NOT BEND, SIT, WALK, COOK, IN WINTER CAN NOT DRESS MY SELF. HUUSBAND WORKS, FAMILY LIVES IN OTHER STATES, HAD "FRIENDS!" LIVING IN A BIG HOUSE VERY HARD TO KEEP IT UP. I AM LOOKING FOR SOME HELP FOR THAT. OUR DREAMS ARE GONE BECAUSE OF ME AND HAVE A LOT OF GUILT. I FEEL SO BAD FOR HIM AS I AM GRADUALLY WILL BECOME A TOTAL BURDEN. I CARED FOR MY MOTHER SADLY IN A NURSING HOME HAD TO BE THERE EVERYDAY TO KEEP AN EYE ON EVERYTHING. HOW CAN I HELP HIM. HE IS SO TIRED. I DO THE BEST I CAN BUT.....LIVE IN THE COUNTRY NOT TOO MANY ORGANIZATIONS TO CALL. SOME DAYS WE ARE SO DEPRESSED. I AM SO ANGY AT WHAT THE MEDICAL "PROFESSION DID TO MY SO CALLED LIFE AND TO OTHERS WITH THE SAME DIAGNOSIS!! THEY TAKE NO RESPONSIBILITY! MY GOAL IS TO CHANGE THAT!
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Hello @kimspr3 I am sorry to read of your health difficulties. That must be a very difficult diagnosis to bear for sure.
I understand when you talk about your guilt. My wife and I felt tremendous guilt at the resources we had to use up to meet her medical needs when there were so many other things in life we had hoped to be able to do. But when you receive a chronic illness I think almost everything in your world changes. At least it did for us. Our family also lived in other states and our small town had no real resources for us until my wife was prescribed hospice care.
We experienced both great medical professionals as well as really bad ones during my wife's journey. Luckily she did have one doctor who was extraordinary for her and with me as her caregiver. He was a neuro-oncologist and he was amazing -- it made up for many of the less than adequate other medical professionals we had endured prior to his care.
I hope you have found some solid medical support! Have you?
Strength, courage, and peace to you and your husband