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New MAI diagnosis with also a fungal infection

MAC & Bronchiectasis | Last Active: May 13, 2023 | Replies (10)

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@windwalker

@tamilyn Hi there. It sounds like you had a rough start to this year. Are you at least feeling any better since February? I had MAI and pseudomonas. I feel like I may have had Aspergillis too, will have to check back over my records over the years. Many doctors, mine included, like to take the wait and see approach to treament. Sometimes, your body will fight this off on it's own. There are members on this site who opted to not do the antibiotics (the Big 3 as we affectionately call them). There are those who chose to do a different course of antibiotics (like I did). You can click on my photo icon and my story will pop up. It is a difficult choice to make. No one treatment plan fits all. It must be an individualized plan, because mac affects everyone differently. I was diagnosed with mac in 2005 and declined treatment with the big 3 antibiotics. I was put on a short run of azithromycin instead. It knocked the mac down a bit, but I got sicker over the years, and my lung function steadily dropped year after year. My lung tissue was being destroyed by repetitive lung infections due to bronchiectasis. Please take the time to read over our older posts; you will learn a tremendous amount. We all have differing stories in dealing with this disease. For example: @irene5 wishes she started on the Big 3 antibiotics at the onstart od her infection. She did not, and believes it all got compoundingly worse by not doing so. Others chose no treatment at all, like @alletcatkate and @pfists, and now test negative. So you see, it affects us all differently. Therefore, treatment should be tailored-made for each of us. You can click on a member's @name or icon picture, and their past posts will come up. Then, you can read about each one's individual journey with mac. You can also find a long list of topics regarding this disease on this group's main page under 'Discussions'. Are you able to navigate this group site alright?

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Replies to "@tamilyn Hi there. It sounds like you had a rough start to this year. Are you..."

What is the typical treatment for MAI. 3 physicians just dismiss it
Thanks